Call for help with research design

| 13th March, 2023

Children’s Heartbeat Trust and Professor Frank Casey are working in collaboration with Queen’s University Belfast and University Ulster on four research projects that hope to improve the specialist cardiac services heart families receive.

In order for the research to be most beneficial for heart families, we need your input at the design stage!

Please join us for an informal information evening with Professor Frank Casey on Wednesday 29th March 6.30pm – 7.00pm via Zoom, to tell you more about the projects and how you can help him and his team.

To register for the information night please click the link below.

The projects will investigate:

  • Physical activity in children with CHD
  • Early educational experiences of children with CHD
  • Antenatal diagnosis of CHD in pregnancy
  • Long-term quality of life for children and young people with Down Syndrome and CHD

Get in Touch

If you would like to speak to other parents from Northern Ireland that have been in your position and can offer some non-medical advice.

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