Supporting families of children and young people with heart disease in Northern Ireland.

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Children's Heartbeat Trust
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Family Story - Ciaran’s Story

Ciaran was a very sick baby born via emergency C-section in the Royal maternity unit on 13th of October 2008.  Diagnosed with Digeorge syndrome after birth following the diagnosis of a rare heart condition called pulmonary atresia with vsd by his heart consultant Dr Casey.  He spent three weeks in Neo-natal unit. we were advised …

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Facts and Figures

Facts and Figures

babies born per year in Northern Ireland with Congenital Heart Disease.

Facts and Figures

of these children will face open heart surgery throughout their lives.

Facts and Figures

families supported financially when having to travel outside NI for their child’s surgery.