Practical support for families of children and young people with heart disease.Find Out More
We have a fab Teen Programme running for young people living with congenital heart disease.Find Out More
Ciaran was a very sick baby born via emergency C-section in the Royal maternity unit on 13th of October 2008. Diagnosed with Digeorge syndrome after birth following the diagnosis of a rare heart condition called pulmonary atresia with vsd by his heart consultant Dr Casey. He spent three weeks in Neo-natal unit. we were advised …Read Full Story
babies born per year in Northern Ireland with Congenital Heart Disease.
of these children will face open heart surgery throughout their lives.
families supported financially when having to travel outside NI for their child’s surgery.