Transition information event for heart teens and families

February 22nd, 2016

On Saturday 12 March we are organising a Transition Information Event about moving from the children’s cardiac service to the adult cardiac services. This is a great opportunity for our heart teens, parents and carers to meet the clinical transition team and hear from a variety of dr’s, nurses and speakers talking all things transition!

We know that change can be daunting, particularly when it is something this important so we hope that after this event you feel much more informed and have a better idea of what to expect as you move towards adult services in Belfast. It’s also a brilliant chance to get to meet new teens and families AND there will be pizza : )

 

The event will take place from 2pm – 4.30pm in Cafe Renoir (upstairs) on Botanic Avenue, Belfast on Sat 12 March.

Places are limited and filling up fast so if you would like to come along please PM us or email sarah@childrensheartbeattrust.org

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Fab Friday 19.2.16

February 19th, 2016

It’s Friday which means it’s time for a Fab Fundraising Friday. Thank you again to everyone who has supported us through recent fundraising events. We are soo grateful for your wonderful support. Check out just a snippet of the things which have been happening in aid of the charity.

If your fundraising don’t forget to inform us by emailing lynn@childrensheartbeattrust.org

 

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Black Box

Sarah Jones, Director of The Black Box is pictured presenting a cheque for £3,350 to Lynn Cowan. The money was raised from The Black Box Christmas Party organised by Strange Victory and Dragon Records.

Campbell College

Campbell College in Belfast held their annual Christmas Contential Market at the school in aid of the charity and raised an amazing £3000. Patrick Stewart and Samuel McCarthy are pictured presenting the money to Lynn and Lucy Allen

Courtney McLaughlin

Courtney McLaughlin held a Valentine’s Disco in aid of the charity and raised £201 from the event! Her little Goddaughter Rosie receives support from the charity.

Kilmood GB

Childrens Heartbeat Trust Published by Lynn Cowan Page Liked · February 19 · Kilmood GB held a Coffee & Craft evening recently and raised £1500 which was divided between Children’s Heartbeat Trust and NI Children’s Hospice. The girls are pictured presenting the cheque to the Martin Family who is supported by the charity and whose eldest daughter Laurie attends the GB.

Quality For All Event

Quality for All were delighted to present lots of charities with cheques recently and pictured amongst the many benefiting charities is Sarah and Lucy receiving a generous £6,000 from Quality For All.

Sixteen South

Staff members at Sixteen South are pictured presenting a cheque for £350 which was raised from a recent fancy dress day at work.

St Mary's Primary School Derrymore

Pictured is Mary Gowdy receiving a £100 donation cheque from St Mary’s Primary School, Derrymore.

Watt Fun Community Group

Jemima Small from Watt Fun Community Playgroup is pictured presenting a cheque to Jo and Sasha Hargan. The Playgroup which Sasha attends held an event as part of Heart Week and raised £105.80.

 

Love At Valentine’s Ball

February 17th, 2016

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There was love in the air at the Children’s Heartbeat Trust Valentine’s Ball held at the Hilton Hotel in Belfast on Saturday 13th February.  Organised by the charities Belfast Family Support Group the event was a huge success of glitz and glamour, raising vital awareness and funds for the charity.

Over 240 people packed into the Hotel for a three course evening meal, followed by a raffle, auction and live music from Mother’s Little Helpers.

Our sincere thanks must be extended to everyone who attended the evening, donated, and all businesses who provided raffle and auction prizes for the evening.  Your generosity bares no bounds and we are extremely grateful for your contribution.  

To date over £13,500 has been raised from the event which will go towards supporting local families here who’s children are living with a heart defect. What an amazing amount! 

Take a glimpse at some of our photos from the evening!  More can be found on our facebook page by clicking HERE

 

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Denise Jess, Dawn Dunwoody and Jean Hill

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Aidan Kearney, Peter Kennedy & Michael Fitzpatrick

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Alison Crawford and Brendan Scott

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Eddie Pearl and Dennis Hill

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Judith Cowan, Alison Wolseley, Jenny Black & Judy Stewart

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The Quinlan Family & Friends

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Mary McCaffrey, Ignatius Maguire, Sarah Maguire, Grainne Curran

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The Room all set up for the Ball

#RockRedFriday Success!

February 16th, 2016

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#RockRedFriday Success

As part of Heart Week (8-14th February) we encouraged everyone to help raise awareness and funds for local children living with heart disease in Northern Ireland by ROCKING RED!

You did not disappoint and we had lots of Rocking Red fundraising events and lots of our heart families posting pics of themselves using the hashtag #RockRedFriday on our social media pages.  It was a brilliant day in helping raise awareness of what we do for local children and their families.

A BIG THANK YOU TO EVERYONE WHO GOT INVOLVED.   From the campaign we generated lots more funds for our services and had an additional 100 likes to our Facebook and Twitter pages – great for awareness!

If you didn’t get a chance to Rock Red, you still can by holding a Rock Red fundraiser when suits you, your school, work place or organisation etc. 

There are lots of  ideas which you can do to add to you Rock Red Event:

Wear Something Red: socks, tie, hairband, shoes etc

Red Fancy Dress: Spiderman, Power Ranger, Little Red Riding Hood…

Red Lunch Day: Bring something Red in your lunchbox

Red Baton Relay: Organise a Red Run around your school/playgroup grounds

Red Velvet Cup Cake Sale: Get colleagues, staff or friends to bake some yummy buns

All fundraising from Rock Red is greatly appreciated and will help us to make a difference to local children and young people living with heart disease in Northern Ireland. 

For your fundraising pack, please contact Lynn on 028 9031 2228 or email lynn@childrensheartbeattrust.org

You can check out all our wonderful #RockRedFriday photos on our facebook page!  CLICK HERE

 

 

02n February 16 - Picture by Darren Kidd / Press Eye.

Kelsie Robinson launching Rock Red at the City Hall- Picture by Darren Kidd / Press Eye.

Fab Friday 29.1.16

January 29th, 2016

Yay, it’s Friday and the last one of January! It’s been a long month but we’ve had some more fabulous fundraising. Check out our photos of some of the things that have been happening in aid of the charity.

 

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Pictured is Liam (staff member) and pupils from Early Learners Nursery presenting a cheque for £400 to CHT. Staff asked parents to give a small donation instead of buying them Christmas gifts!

 

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Elaine Thorton is pictured presenting Lynn with a cheque for £2,401.14 which was raised from her complete the Dublin Marathon last year. Her work, Bombardier also match funded her donation with £500.

Farahmand Family

The Farahmand Family are pictured presenting a donation of £280. Part of the money was raised from sponsorship of Sober November which Chantelle took part in.

Oran Creaney Total 1

Aisling, Barry and little Molly Creaney are pictured presenting Dr Frank Casey with a fundraising cheque for £7,318.75 which was raised from Oran’s Golf Day Classic.

SilverBirch Playgroup

SilverBirch Day Care in Magherafelt held a Christmas Jumper Day and raised £186! Pictured are Emily Bennett (Creche Manager), Kayley Niblock-Preston, Zosia Hogg, Iara Rosborough, Leo Barton-Whitcroft, Sarah McWilliams, Emma McWilliams, Joanne Hawthorne (Room Assistant), Aimee Brady and Taylor Brady.

St Jospeh's Primary

Michael Hanvery is pictured with his school friends from St Joseph’s Primary School in Belfast presenting £230 which was raised from Raffling Hampers in the School. The Hampers were made up by his mum Pauline and the money raised was divided between Children’s Heartbeat Trust and the Children to Lapland Trust.

Davy Boyle

Davy Boyle, the Caring Caretaker from Coleraine is pictured presenting Sarah with a generous cheque for £4000. The money was raised from his Big Breakfast and also the Coleraine Christmas Sit Out which was divided between 8 worthy charities.



Calling all young artists – help us Design a Logo for the Children’s Heart Network Services between Belfast & Dublin!

January 26th, 2016

I love artCHD Network Board

ART COMPETITION

The Family Engagement Group are holding an art competition to design a logo for the All Island Congenital Heart Disease Network. The name is very long so we need a logo that will easily help people know what we are talking about.

What are we talking about? When completed the all island congenital heart disease network will fully link up the two children’s hospitals with congenital heart services in Northern Ireland and Republic of Ireland so that nearly all children and young people needing heart surgery will be able to receive it on the island.

The competition has three age categories

4 – 7 years old

8 – 11 years old

12- 16 years old

The logo design can use any colours or materials you like and take any shape that you want.

There will be winners in each category and one overall winner!    Each winner will receive a £50 Voucher.

The overall winning logo will be used as inspiration to create the new all island CHD Network logo.

Include your name, age and a contact telephone number either on the front or back of your entry

Return your entry to:  Children’s Heartbeat Trust, Howard Building, Twin Spires Centre, 155 Northumberland St, Belfast BT13 2JF

Return entry by Wednesday 17th February 2016

We are super looking forward to seeing your entries!

Paediatric First Aid in Enniskillen

January 26th, 2016

Bandage 1

Our next Paediatric First Aid Training is happening in Enniskillen on Saturday 12th March 2016!

This is a fully certified course and is free to any of our heart families over the age of 16. The course will teach you a basic knowledge of paediatric first aid and we can guarantee you will have fun getting to grips with bandages and fake casualties along the way!! Booking is essential, please see below for further details;

Saturday 12th March 2016

9am – 5pm

Enniskillen Business Centre

21 Lackaghboy Road, Enniskillen

Email cathy@childrensheartbeattrust.org to book your space! 

Information from Family Engagement Group

January 25th, 2016

All-island Congenital Heart Disease (CHD) Network

Family Engagement Group

Update from the Family Engagement Group

In October 2014 the Minister of Health in Northern Ireland and the Minister of Health in the Republic of Ireland made a joint policy statement agreeing that children’s paediatric cardiology services should be delivered across an all island CHD network.   This agreement was reached following a report from an International Working Group chaired by Dr John Mayer from the Boston Children’s Hospital which set out fourteen recommendations on the development of this single congenital cardiac service. You can read the report hereinfo icon

Recommendation 2 was the establishment of a ‘Family Advisory Group with representation from both jurisdictions that will meet at least quarterly that will include clinical nurse specialists and other family support staff to provide direct input for the Governance Committee’.

From this, the Network Board set up a Family Engagement Group to engage with and represent children and young people with heart disease and their families within the all island CHD network.  The Co-Chairs of this group also sit on the Network Board and are Sarah Quinlan from Children’s Heartbeat Trust and Margaret Rogers from Heart Children Ireland.

Simply put, the Family Engagement Group is here to ensure that heart families are at the centre of any decisions or processes put in place during the development of the network.

Sitting on this group are;

Cardiac Nurse Specialists from Clark Clinic at the Royal Belfast Hospital for Sick Children (RBHSC) & Our Lady’s Children’s Hospital in Crumlin (OLCHC).

Clinical Psychologists from RBHSC and OLCHC

Family representatives from 3 charities;

Children’s Heartbeat Trust     – sarah@childrensheartbeattrust.org    028 9031 2228

Heart Children Ireland        – heartchildren@eircom.net            (00 353 1) 8740990         

Heartbeat NI – mckibbin@btinternet.com           078 0137 0297

There will also be a number of sub-groups developed to make sure that we are hearing from as many patients and families as possible – Family Focus groups, Young Person’s group etc.

Communication and information will be the key focus of this group – both communicating developments and practical information about the network to families and facilitating feedback, experiences and recommendations concerning the service to those delivering it.

By spring 2016 we hope to have a Network Board website and social media in place to allow for a streamlined central source of information for families across the island. We will also be putting in place the initial stages for engagement and feedback mechanism.

Whilst this is being developed we would encourage any families with thoughts, ideas or feedback about the all-island network services to get in touch with your clinical nurse specialist or any of the three charities noted above.

Family Engagement Group

First Fab Friday of 2016

January 15th, 2016

Here is the first of many ”Fab Fundraiser Friday’s” for 2016! Lots of people have been busy raising funds for our work. A big heartfelt thanks to everyone who has donated to all the recent events happening. Its greatly appreciated.

 

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24th Belfast Boys Brigade

24th Belfast Boys Brigade held a charity christmas stall and raised £200. Pictured are the boys presenting the cheque to Lynn. Well Done Boys!

Conratty Crochet Club

Pictured are the lovely ladies from Conratty Crochet Club who very kindly crocheted and donated lots of gorgeous blankets for the children on Clark Clinic.

Cora - Sacred Heart Primary

Cora McCourt is pictured with Lynn handing a cheque over for £100 which was raised from Cora’s sister School, Sacred Heart Primary who did a fundraiser in aid of the charity.

Dundela Football Club

Members of Dundela Football Club are pictured presenting Lynn with £1,750 which was raised from a recent fundraising event in aid of CHT and Macmillan Cancer Support.

Huhtamaki

The charity committee on behalf of all the staff at Huhtamaki in Lurgan are pictured presenting Lynn with a cheque for £4,085 which was raised from a series of fundraising events throughout the year!

John McElroy & Cathel Corr

John McElroy and his daughter Ava are pictured with Cathal Corr after they raised £695 from a sponsored beard shave for the charity.

Paula Magee £111

Paula Magee is pictured with her WeightWatchers Leader after raising £111 from her WW Classes. Well Done Paula. All the class helped raise this money in memory of her son Cahir Magee

Andrew Mercer Abseil

The Mercer Family are pictured presenting £260.25 which was raised from dad, Andrew who abseiled from Belfast Castle back in September for their daughter Lacie.

Gym Co

Seaneen Croy, centre is pictured with Gym Co staff member Jack Brown presenting Lynn with a cheque of funds raised from a 20/20/20 Bootcamp Challenge held at gym co. The total has now reached £2,217.72!

Victoria Primary PS

Pupils from Victoria Primary are pictured presenting Lynn with a cheque for £1,240 which was raised from selling armbands and taking part in a sponsored walk around the school.

Fairhill PS and Nursery (3)

Fairhill Nursery & Primary School presenting a £500 cheque from a non-uniform day. Pictured is Kim Mairs, Jim Brown, Kathy Calvin with her son Jamie Calvin (Bottom) and other pupils.

Valentine’s Ball for CHT

January 11th, 2016

 

Our Belfast Group are organising a Black Tie Valentine’s Ball which will be held in the Hilton Hotel in Belfast on Saturday 13th February.

The evening will include a 3 course meal with live band, auction and raffle! What a great way to spend Valentine’s with friends and family whilst supporting a local children’s heart charity.

Tickets are £45 and can be booked by calling 028 9031 2228 or emailing lynn@childrensheartbeattrust.org

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