Another FAB FUNDRAISER FRIDAY! Thank you again to more of our fabulous fundraisers, family and friends! Here’s another few shots of cheque presentations this week.
We are pleased to announce that Professor Nichola Rooney will be undertaking the role of Chair of our Board of Directors, from which Dr Connor Mulholland recently retired. Professor Rooney holds a number of roles within the Health sector in Northern Ireland including Special Advisor to the Chief Medical Officer and Professional Advisor to the RQIA, having previously worked as a Consultant Clinical Psychologist in the Health Service for over 18 years, culminating in appointment as Head of Psychological Services at the Belfast Health and Social Care Trust.
Professor Rooney may be a familiar face to some of our heart families, as she was the first full time clinical psychologist attached to Clark Clinic and spent a number of years developing internationally recognised support services for families. We are delighted that she is now returning to work with heart families in Northern Ireland once more as Chair of the charity and are looking forward to continuing our work in developing and enhancing provision for heart families with Professor Rooney at the helm.
Again, here’s a few snap shots of some recent events from our Fab Fundraisers. If you’ve had a fundraising event and would like a cheque presentation or would like to fundraise for us, please get in touch with Lynn via: lynn@childrensheartbeattru
st.org or call 074 8337 4910.
Following the success of our Mum’s Pamper Party earlier in the year it’s now Dad’s turn to have a day off and get to know other Dads of children and young people with heart disease. Come along to Jungle NI on Sunday 27th September to take on the treetop adventure challenge and share a bite to eat with other local Dad’s! For more information or to book your space contact Cathy on firstname.lastname@example.org
It’s that time again for FAB FUNDRAISER FRIDAY. Another huge thank you to everyone who has supported us recently with fundraising activities! Here’s a few snap shots of some recent events. If you’ve had a fundraising event and would like a cheque presentation or would like to fundraise for us, please get in touch with Lynn via: lynn@childrensheartbeattru
st.org or call 074 8337 4910.
The all-island Congenital Heart Disease (CHD) Network Board, comprising of patient representatives, clinicians, service providers and commissioners is now meeting monthly. Children’s Heartbeat Trust sit on the Board to represent the views of children and their families from Northern Ireland. The aim of this Board is to develop a world class patient and family-centric Congenital Heart Disease Service for the island of Ireland and the charity will be working hard to ensure that this aim is at the centre of all the work of this group.
Children’s Heartbeat Trust are also Co-Chair of the Family Engagement Group which will feed into the Network Board. This group focuses on family and patient experiences, gathering and presenting feedback as well as communicating changes to the services and important information for families. The first meeting is scheduled for September and is a key way that we can shape the network service from the outset. It is really crucial that we take this opportunity to share your experiences, thoughts and ideas on what is working well and how the service can be improved. Please keep an eye on our website and facebook for ways you can get involved.
Since May 2015 catheterisations for paediatric patients have moved from Belfast to Dublin and are undertaken in Dublin by the Belfast team. By all accounts, both clinical and from families, this transfer has worked well which is testimony to the hard work and collaboration of a large number of clinicians and nurses from both the Belfast and Dublin teams. If you are awaiting a cath appointment you should be contacted by the team in Clark Clinic with all the information you require.
A huge challenge for our heart families is that currently the vast majority of families are still travelling to England for their child’s surgery. Although we have received assurances that when emergency surgery is required this will happen in Dublin, we are pushing for the investment needed to improve PICU capacity in Dublin to reduce the amount of babies, children and families having to get on a plane to access planned care.
Children’s Heartbeat Trust are here to support and represent our heart families during this transition period, so if you have any concerns or questions you can call us on 028 9031 2228 or email email@example.com
This is the start of our Fab Fundraiser Friday’s! An opportunity every Friday to thank all our recent fundraisers who have done fantastic work raising funds and awareness of Children’s Heartbeat Trust!
Done a recent fundraiser and want a cheque presentation photo?
Please contact Lynn on 07483374910 / 028 9031 2228 or email firstname.lastname@example.org
A great day was had by all at our first summer fun day of the year on Saturday 27th June 2015! We headed down to the Odyssey in Belfast to take on all the different tasks, challenges and activities that W5 had to offer!
W5 had lots to keep us busy, from train tracks to climbing frames and laser tag to graffitti walls there was plenty to keep the whole family entertained whilst we all got to know each other a little better!
Big thank you to everyone that could make it along on Saturday, we really enjoyed catching up with you all and meeting some new additions to our huge heart family! We have another family fun day coming up on Saturday 22nd August so please don’t hesitate to get in touch with Cathy on 074 36589480 or email; email@example.com to book your space! 🙂