Public Meeting & HANDS UP March!

January 14th, 2013

 

Two dates for the Diary…

Sun 27 Jan at 6.30pm in Dunsilly Hotel, Antrim:

HANDS UP Campaign update meeting.  This is an opportunity to meet and get an update on the campaign to protect and enhance children’s heart surgery in Northern Ireland.  We will have a children’s entertainer at hand to keep the kids amused if babysitters aren’t forthcoming and you don’t want to miss the meeting!

Our HANDS UP Demonstration March has been rescheduled for Sat 2 February – 11AM from RBHSC to Linenhall St

Please aim to arrive for 10.45 am as we plan to leave promptly at 11 am

As before we will be putting on buses to bring participants down from across Northern Ireland.  The buses will be coming from Enniskillen, Craigavon and L/Derry.  To ensure a seat on the bus for you and your family please contact

Enniskillen – pick up Ballygalley r’about – pick up Portadown : Jennifer Keys 07745068571

L/Derry – pick up Dungiven – pick up Dunsilly r’about: Claire Ball 07817620831

Craigavon – pick up Lisburn: Mary Gowdy 07762317335

If there are other buses needed from a different area let us know and we will try and ensure that all those who what to come along and demonstrate for our safe children’s surgery in Belfast can!

**If the current demonstrations across Belfast continue until the date of our march we may have to cancel the march due to safety concerns**

 

Caravans open for bookings 2013

January 14th, 2013

The caravans are now opened for bookings for 2013!

**Please note that if uou and your family enjoyed a stay in our caravans last year then you can provisionally book now, but we will be unable to confirm the date until the end of February. This is to ensure that families who have not yet had an opportunity to have a holiday in the caravans are given priority**

We have two caravans available for the use of families in Northern Ireland. It can be difficult to travel far with a sick child and so these caravans provide a welcome opportunity to enjoy a break close to home!

The caravans are situated at Windsor Caravan Park, Dundrum Road, Newcastle and Silvercliffs Caravan Park, Clare Road in Ballycastle.

The caravans are both have 1 x double bedroom, and 2 x twin bedrooms, as well as a living area, dining area and kitchen. Each caravan also has a television in case it rains! The kitchens are stocked with, cups, plates, glasses and cutlery.

We do ask that those staying bring their own bedding, (sheets, pillows, quilts, sleeping bags etc,) tea towels and towels. The cost is £50.00 per week which runs from Saturday to Saturday.

The caravans are also available for weekends or long weekends from April to June and September, but only if not booked for the week.

Weekends not available during July and August.

The caravans can be booked through Maria Kennedy, our caravan booking secretary on 028 9147 3632 or email info@childrensheartbeattrust.org. Once a request is made a booking form and general rules will be sent out.

Opportunity to observe PCCS Working Group Meetings

January 3rd, 2013

The Paediatric Congenital Cardiac Services working groups start again from Friday 4th Jan at 12.30pm and continue every Friday for the next few weeks in the HSCB Headquarters, Linenhall St, Belfast.  If you would like to come and observe at the meeting tomo please let me know so can pass on numbers.  Either post below, email info@childrensheartbeattrust.org or call 07584 164 815

CONSULTATION RESPONSE DEADLINE – 5PM FRIDAY 21 DECEMBER

December 18th, 2012

FOUR DAYS LEFT  to get in your consultation responses on the future of children’s heart surgery – closing date Fri 21 Dec.
Remember you can email it to PCCSConsultation@hscni.net or post to Paediatric Congenital Cardiac Service Consulation, Health & Social Care Board, 12 – 22 Linenhall Street, Belfast BT12 8BS. If you are finding it difficult to fill in take a look at our guidelines which should help!

Teenagers & Young Adults Focus Group – Belfast – 19 December 7pm

December 14th, 2012

The HSCB have asked us to highlight that a final focus groups for teenagers and young adults has been scheduled for Wed 19 Dec 7pm – 8pm in Belfast. The aim of the focus group is to:

– Draw on the experiences of the participants
– Enhance understanding of issues highlighted within the consultation document
– Enhance understanding of the various options within the document
– Seek participants’ v

iews on the key questions contained within the consultation document
– To encourage participants to formally respond to the consultation by completing the consultation questionnaire.

This had gone out to a representative group of teenagers and young adults but the take up was quite low which is why we have now been asked to open it up. I know we have lots of teenager and adult patients coming through Clark Clinic and this is a good chance to have your say.

If you would like to attend this focus group could you please contact Claire Paterson at Participation Network by phone 028 9040 1290 or email – claire@ci-ni.org.uk.

ONLY ONE WEEK UNTIL CONSULTATION DEADLINE

December 14th, 2012

ONLY ONE WEEK TO GO! All consultation responses on the future of children’s heart surgery in Northern Ireland must be into HSCB on Friday 21 Dec.

Make sure you get your response in, it can be either in the format provided or a letter or an email so there is no excuse!

Go to http://www.childrensheartbeattrust.org/hands-up-campaign/respond-to-consultation/ for the relevant documents and our guidelines to help you with your response.

You can email your response to PCCSConsultation@hscni.net or post to Paediatric Congenital Cardiac Service Consulation, Health & Social Care Board, 12 – 22 Linenhall Street, Belfast BT12 8BS. .

 

Christmas Charity Shop – Christmas Cards, T-shirts, Hoodies & more..

December 4th, 2012

This year our Christmas shop includes stock with our old logo – we need to clear space on the shelves for lots of new items in the new year!  Items and prices as below (P&P not included)

xmas cardsDSC_1027

Christmas Cards – £5 for a pack of 10 cards

Clarke bear – £5 Santa hat not included :-)

Children’s Heartbeat Trust Hoodie – donation

Children’s Heartbeat Trust Polo – donation

Children’s Heartbeat Trust Babygro – donation

Children’s Heartbeat Trust T-shirts – donation

Children’s Heartbeat Trust kids T-shirts – donation

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Contact  info@childrensheartbeattrust.org /07584 164 815 to order.

CANCELLED – Hands Up March; 12 noon Sat 8 Dec;

December 3rd, 2012

**MARCH POSTPONED** We have decided that with the potential for continued street protests in Belfast on Saturday, we will have to postpone our planned march and family Christmas party.  We cannot take the risk of children and families being caught up in other protests or disturbances.  We are really disappointed about this but our priority is ensuring our families and children’s welfare.  Our plan is to reschedule the March for January.

Charity Night with James D Huish; Bronte Steakhouse; Thurs 6 Dec

December 3rd, 2012

Annual Charity Night for Children’s Heartbeat Trust at the Bronte Steakhouse. Thursday 6th December at 7pm with the brilliant James D Huishproviding the entertainment so its going to be a night not to be missed! …

 

Auction & Prize Draw on the evening.
Up for Auction on the Night;
Signed Ulster Rugby Top
Confirmed Prizes for our Draw on the Night;
Stena Line Crossing for Car &2 on the Belfast to Cairnryan Route
Solid Fuel Bundle from Banbridge Fuels
£75 Location Shoot Voucher from Gary Crossan
Photography including high res disc of images
Gift Voucher for Lee Lyons Hair Boutique
Dromore Gift Voucher for The Look Rathfriland
Gift Voucher from SM Shoes Rathfriland
 Gift Voucher & He Shi Gift Set from The Beauty Room, Rathfriland
Gift Voucher from Lil Miss Colour, Banbridge
Gift Voucher from Deep Blue, Rathfriland
Gift Voucher from Donaghys, Banbridge
Perfect for a Christmas night out maybe! Make sure to call us on 028 406 51338 to book your table or send us a private message along with your contact telephone number.

POSTPONED – HANDS UP MARCH –

December 3rd, 2012

**POSTPONED**

We have been forced to make the decision to postpone a planned rally and family Christmas party this weekend, in the face of continuing street protests.

Sarah Quinlan, Executive Officer of the Trust explained the situation.

“We had planned a Family March and Christmas Party to allow children and families to show their support for the retention of this vital service in Northern Ireland. The police and Parades Commission had been informed and hundreds of people were planning to come to Belfast from right across the region. The march to the Health & Social Care Board offices was to be followed by a party in City Hall for the children.

“I have been in ongoing contact with the police and unfortunately the situation is too volatile to go ahead with our rally. We need to make this decision now as pulling the event any closer to the date would be too late. We will come back in January and we are determined to make the voices of our children and parents heard.

“People need to make their views known on this crucial issue. There is political uncertainty surrounding the process as it applies in England and Wales, and in Scotland the process was rejected as unsuitable. The preferred option for clinicians and families is an all-island surgical network operating from Belfast and Dublin. I hope everybody who was going to support the rally will use that time to respond to the ongoing consultation.”

The consultation can be found at  http://www.hscboard.hscni.net/lnews/Paediatric_Congenital_Cardiac_Services