Fab Fundraiser Friday 7.8.15

August 7th, 2015

Another FAB FUNDRAISER FRIDAY! Thank you again to more of our fabulous fundraisers, family and friends! Here’s another few shots of cheque presentations this week.




Belfast Running Club
Belfast Running Club were all cheers recently as they handed over £1,635.00 raised from 6 Relay Teams in the Belfast Marathon! Great work – who’s up for next year?


Clint Palmer
The Palmer Family held Sophie’s Golf and Fun Day and raised a staggering £9,200 for CHT and Downs Syndrome Association. Huge thank you to everyone who supported this event which is now in its third year!


David Moore
#TEAMBEN! David Moore pictured in blue ran the Ards Half Marathon for Little Ben, pictured left who receives support from CHT! Ben is with his Dad and Mum Alan and Danielle and brothers Jude and Oliver helping to present a cheque with David and two sons Oscar and Zach with Lynn Cowan from the Children’s Heartbeat Trust. David raised £2,065.50! Fantastic and thank you to everyone who supported him!
JMK 3 new
JMK Solicitors in Newry held a quiz recently at The Brass Monkey and what a night it was raising £2,400 for our work and services. Many Thanks to everyone who attended the quiz and helped in anyway! Pictured us Marie Claire Meehan, Asleen Poland and Lynn Cowan.


Paul Brennan 1
Huge congratulations to Paul Brennan who completed the Belfast Marathon for CHT and raised £536.25. Great work Paul!


New Chair for our Board of Directors

August 4th, 2015

Professor Nichola Rooney

We are pleased to announce that Professor Nichola Rooney will be undertaking the role of Chair of our Board of Directors, from which Dr Connor Mulholland recently retired. Professor Rooney holds a number of roles within the Health sector in Northern Ireland including Special Advisor to the Chief Medical Officer and Professional Advisor to the RQIA, having previously worked as a Consultant Clinical Psychologist in the Health Service for over 18 years, culminating in appointment as Head of Psychological Services at the Belfast Health and Social Care Trust.

Professor Rooney may be a familiar face to some of our heart families, as she was the first full time clinical psychologist attached to Clark Clinic and spent a number of years developing internationally recognised support services for families. We are delighted that she is now returning to work with heart families in Northern Ireland once more as Chair of the charity and are looking forward to continuing our work in developing and enhancing provision for heart families with Professor Rooney at the helm.

Tom McCready Golf Day – Friday 21st August

August 3rd, 2015


21.8.15 Tom McCready pic

Register now for our Family Conference 2015

July 31st, 2015


Fab Fundraiser Friday 31.7.15

July 31st, 2015


Again, here’s a few snap shots of some recent events from our Fab Fundraisers. If you’ve had a fundraising event and would like a cheque presentation or would like to fundraise for us, please get in touch with Lynn via: lynn@childrensheartbeattrust.org or call 074 8337 4910.


Archway Youth Club raised £450 from various fundraising activities including a sponsored walk, bun sale and cinema night. Well done!


Sarah Browne and her family held a Naming Day for Baby Eliza (Pictured) and raised £210.00 for CHT. Also pictured are Sarah’s sons who helped sell wrist bands and Clark Teddy Bears!


Sacred Heart Grammer
Sacred Heart Grammer School in Newry held various fundraising activities throughout the year and raised a fantastic £663.30!


Salsa NI held their annual Summer Ball at Belfast Castle and raised an impressive £1,020 from Dancing the Night away! Pictured is Chris Scullion and Lynn Cowan.



Dad’s Day

July 30th, 2015

Following the success of our Mum’s Pamper Party earlier in the year it’s now Dad’s turn to have a day off and get to know other Dads of children and young people with heart disease. Come along to Jungle NI on Sunday 27th September to take on the treetop adventure challenge and share a bite to eat with other local Dad’s! For more information or to book your space contact Cathy on cathy@childrensheartbeattrust.org

Dads Day Poster

Fab Fundraiser Friday 24.7.15

July 24th, 2015


It’s that time again for FAB FUNDRAISER FRIDAY. Another huge thank you to everyone who has supported us recently with fundraising activities! Here’s a few snap shots of some recent events. If you’ve had a fundraising event and would like a cheque presentation or would like to fundraise for us, please get in touch with Lynn via: lynn@childrensheartbeattrust.org or call 074 8337 4910.


Thanks must go to Willowbreeze Fly Fishing Club and Raloo Fishery on raising £730 from their annual fishing competition.


Hutchinson Care Homes raised £300 by completing a lb for £ challenge as part of Business in the Community.


Jo Jingles branches in Co. Antrim recently held a fundraising day and raised £300 for CHT & Tiny Life. The branches included Antrim, Ballyclare, Ballymena, Carrickfergus, Larne & Whitehead.


Charity Clay Pigeon Shoot and BBQ organised by friends and family of Cora from Coleraine Yacht Club raised £550. Pictured are Alice, John, Paul Leighton, Mervyn Montgomery, Rhonda, Cora and Sarah.


Caroline Russell presents a cheque for £186.00 which was raised from a collection at Downpatrick Race Course in July.


Stephanie Doran celebrated her 10th birthday recently and presented a cheque to Lynn for an amazing £1,449 which she raised from various fundraising events.


Shortz Fitness held a 24 hr spin-a-thon in Euro Spar, Lurgan and raised a fantastic £1,340.


Pictured are Mountjoy United FC club representatives: Charlie McCrea, David Gilfillan, Sydney Gilfillan, William Jack and Harvey Walker (Junior Player) presenting a cheque for £585.00 to Sarah. The money was raised through proceeds from a draw that was held at the Mountjoy United FC 40th Anniversary Dinner in the Silver Birch Hotel, Omagh.


Pictured is Baby Harry with his Dad Richard presenting CHT with a cheque for £2,550 to Clark Clinic nurse Claire McGennity. The money was raised through a pool competition and waxing event earlier in the year!



All island network update

July 21st, 2015

Heartbeat Trust Bear - ClarkThe all-island Congenital Heart Disease (CHD) Network Board, comprising of patient representatives, clinicians, service providers and commissioners is now meeting monthly. Children’s Heartbeat Trust sit on the Board to represent the views of children and their families from Northern Ireland.   The aim of this Board is to develop a world class patient and family-centric Congenital Heart Disease Service for the island of Ireland and the charity will be working hard to ensure that this aim is at the centre of all the work of this group.

Children’s Heartbeat Trust are also Co-Chair of the Family Engagement Group which will feed into the Network Board. This group focuses on family and patient experiences, gathering and presenting feedback as well as communicating changes to the services and important information for families. The first meeting is scheduled for September and is a key way that we can shape the network service from the outset. It is really crucial that we take this opportunity to share your experiences, thoughts and ideas on what is working well and how the service can be improved. Please keep an eye on our website and facebook for ways you can get involved.

Since May 2015 catheterisations for paediatric patients have moved from Belfast to Dublin and are undertaken in Dublin by the Belfast team. By all accounts, both clinical and from families, this transfer has worked well which is testimony to the hard work and collaboration of a large number of clinicians and nurses from both the Belfast and Dublin teams. If you are awaiting a cath appointment you should be contacted by the team in Clark Clinic with all the information you require.

A huge challenge for our heart families is that currently the vast majority of families are still travelling to England for their child’s surgery. Although we have received assurances that when emergency surgery is required this will happen in Dublin, we are pushing for the investment needed to improve PICU capacity in Dublin to reduce the amount of babies, children and families having to get on a plane to access planned care.

Children’s Heartbeat Trust are here to support and represent our heart families during this transition period, so if you have any concerns or questions you can call us on 028 9031 2228 or email sarah@childrensheartbeattrust.org


Fab Fundraiser Friday 17.7.15

July 17th, 2015


This is the start of our Fab Fundraiser Friday’s! An opportunity every Friday to thank all our recent fundraisers who have done fantastic work raising funds and awareness of Children’s Heartbeat Trust!

Charlotte Paisley presenting a £500 cheque from her Granny and Granda’s dancing group! Pictured with her Mum Jennifer Wright and Dad Mark Paisley

The Wilson Family proudly present £400 in lieu of wedding favours.

P7 pupils at Lisburn Central Primary held an art competition and raised £225.00!


Loanends Presbyterian Church Mums and Tots Group held a name the bunny competition and raised £125.00!


Pamela Cupples along with family and friends held a disco night in Muckamore Cricket Club and raised £1,477.60 in memory of her grandson AJ.


Jean Hill is pictured with Rachel and Ellie handing over £1700 to Alison which was raised from Rachel’s annual Tea Party event.


Mark McIntyre is pictured with Cathy Dalton handing over £403 which he raised from running the Londonderry Marathon.


Parents, staff & pupils from St Colmcilles Nursery and Primary School presented £567.00 to Cathy which was raised from their Wear Your Heart on your Sleeve Day 2015.



Pictured presenting £6,834 to Sarah Quinlan from the Children’s Heartbeat Trust are Barry and Aisling Creaney surrounded by family and friends who all took part in the 2015 DeepRiverrock Belfast City Marathon in memory of Orán Creaney who sadly passed away, age six.

Sarah receives £150 from Harvey and his wee sister. Harvey’s granny knitted little easter chicks and sold them in aid of CHT!

James’ grandfather, David passed away in February this year. One of his wishes was for those who wished could make donations in lieu of flowers in aid of the Children’s Heartbeat Trust and Lisanally Special School, Armagh. We were overwhelmed to receive over £1000 in his memory.


Rainbow Private Day Nursery had a PJ Day in aid of CHT. Pictures is Sarah with Catharine Maybin with kids.


Ciaran Scullion, Darrell Martin and Tony Close took part in Run Mucker Run and are seen presenting a cheque with their families to Sarah.


A white collar boxing match was held by Rab Mitchell at the Dunadry Hotel and raised over £3000 each for CHT and Tiny Life! Amazing!


Done a recent fundraiser and want a cheque presentation photo?

Please contact Lynn on 07483374910 / 028 9031 2228 or email lynn@childrensheartbeattrust.org


Summer Fun at W5, Belfast!

July 1st, 2015

A great day was had by all at our first summer fun day of the year on Saturday 27th June 2015! We headed down to the Odyssey in Belfast to take on all the different tasks, challenges and activities that W5 had to offer!

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W5 had lots to keep us busy, from train tracks to climbing frames and laser tag to graffitti walls there was plenty to keep the whole family entertained whilst we all got to know each other a little better!


Big thank you to everyone that could make it along on Saturday, we really enjoyed catching up with you all and meeting some new additions to our huge heart family! We have another family fun day coming up on Saturday 22nd August so please don’t hesitate to get in touch with Cathy on 074 36589480 or email; cathy@childrensheartbeattrust.org to book your space! 🙂

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