Be a racing heart!

February 15th, 2018

BE A RACING HEART FOR CHILDREN’S HEARTBEAT TRUST!

Bank Holiday Monday will see  thousands of people hitting the streets of Belfast as they take part in the Deep RiverRock Belfast City Marathon. We are on the lookout for heart heroes to take part in aid of Children’s Heartbeat Trust by signing up for the walk, fun run, relay or full marathon. 

To take part, please register your place with the Belfast marathon office via http://www.belfastcitymarathon.com/ then email lynn@childrensheartbeattrust.org to get your running vest and fundraising pack!

If running’s not your thing we are also on the lookout for enthusiastic volunteers to cheer our heart heroes along the way at our designated cheering stations.  If you or your friends and family are free to help please get in touch on 028 9031 2228 or email lynn@childrensheartbeattrust.org

Any support you can offer is greatly apprecaited.

Killylea Country Concert – 7th March 2018

February 14th, 2018

Barry Doyle along with the organisers of Killylea Tractor Run are holding a charity concert to raise more funds for the Air Ambulance, Children’s Heartbeat Trust & NI Children’s Hospice. Tickets £10.00 also payable at door.  For more details please see poster or their event page on facebook  HERE

 

Oran’s Golf Classic – 15th June 2018

February 14th, 2018

Oran’s Golf Classic will take place in June organised by Oran’s mum, dad, family and friends in memory of Oran who sadly passed away in 2014 aged 6.

The Golf Classic has grown in popularity each year and the charity and Oran’s family are extremely grateful for everyone’s support.

To take part in the golf day, please contact Barry on the contact number below.

IMPORTANT CARAVAN INFORMATION

January 22nd, 2018

IMPORTANT CARAVAN INFORMATION

NEW BOOKING RULES AND REQUIREMENTS!

Our caravans in Newcastle, Ballycastle and Castlerock will be open from Easter to Halloween and we will accept requests for booking from 1st February 2018.

Please note that at this time we will only accept booking requests from families who have not enjoyed a stay in one of our caravans during 2017.  From 22nd February 2018 we will open booking of any remaining dates to all of our families.

 

We will only accept booking requests via email as below and will only accept those which are dated 1st February 2018 and include all of the information requested below. Demand is always very high and we appreciate your co-operation in helping us efficiently manage the allocation of dates. We will work through the emailed booking requests in order of receipt and contact you to advise if we can allocate you a holiday.

Only requests that adhere to the rules below will be accepted;

  • Emails must be dated 1st February – not before!

  • You must include all of the requested info as laid out below.

  • Please do not be vague about dates or locations – we will require exact dates and locations in order of preference. Simply saying ‘any’ or ‘summer’ is not sufficient.

  • Please do not email more than once – you will receive an automated acknowledgment email.

  • During July and August we will only accept full week bookings running Saturday to Saturday.

  • Outside of July and August we will accept any requests for durations up to 7 nights.

Email to: admin@childrensheartbeattrust.org with the following info.

  1. Name

  2. Address

  3. Phone number

  4. 1st chosen location and date (eg: Ballycastle 14-21 July)

  5. 2nd chosen location and date (eg: Newcastle 14-21 July)

  6. 3rd chosen location and date (eg: Castlerock 21-28 July)

You can list as many preferences for dates/location as you want

Thanks everyone and good luck!!

 

 

Join us for ROCK RED FRIDAY!

January 12th, 2018

 

 

This February is the return of our ROCK RED FRIDAY event where we encourage everyone to get involved by wearing red and helping to raise awareness and funds for our work with local heart children.

We’re calling all schools, youth clubs, organisations, businesses and individuals to get involved. Simply wear red, raise awareness and donate £1 to Childrens Heartbeat Trust.

Please feel free to post us your rock red images to facebook and twitter using the hashtag #RockRedFriday

 

For a fundraising pack, please email lynn@childrensheartbeattrust.org or call 028 9031 2228.

 

All Island CHD Network Film

January 4th, 2018

Watch the below short film for an update from the paediatric cardiology teams in RBHSC, Belfast and OLCHC, Dublin on the development of the All Island CHD Network.

 

 

 

Children’s Heartbeat Trust Annual Report 2016-17.

December 13th, 2017

Annual Report

Our Year 2016/17 (April 2016 – March 2017)

We are delighted to share the Children’s Heartbeat Trust’s Annual Report which sets out the charity’s significant achievements during April 2016 – March 2017.

During this period the charity provided support services, training and information to over 500 heart families. Our Annual Report will tell you what this looks like, how we have done this and the difference this has made.

We would like to say a huge Thank You to the many people who support our work and make all of this possible!

Find out about how we have supported heart families, developed new services and worked to support Clark Clinic here

 

 

 

All Island CHD Network Conference 2017

December 7th, 2017

On Friday 17th and Saturday 18th November the All Island CHD Network Annual Conference was held in Belfast for the first time.  Over the course of two days, over 350 delegates came together to hear from national and international experts in the field of congenital heart disease including surgeons, consultants, nurses, clinical psychologists and patients.

The Friday programme was tailored to a clinical audience and Saturday’s a patient and family audience, with speakers sharing their experience and expertise across both days.  We were thrilled to hear from Keynote Speaker Dr Chris Caldarone (Surgeon in Chief, Hospital for Sick Children Toronto) who travelled from Canada to join the conference and delivered two fascinating and inspiring talks about the importance of leadership within a clinical setting and how to encourage and develop innovative approaches for the treatment of congenital heart defects.

Other highlights of the conference included Dr Frank Casey (Consultant Paediatric Cardiologist, RBHSC) and Dr Paul Oslizlok’s (Consultant Paediatric Cardioloist, OLCHC) joint presentation on the development of the All Island CHD Network, and the talks given by two patients – Rianna McAteer (17) and Siobhan Quinn (37) about the realities of growing up with CHD.

The conference is a wonderful opportunity for our heart families to meet and hear from a range of clinical and allied health professionals, and we were delighted that so many families from RoI were able to join us in Belfast to benefit from this knowledge, meet with other heart families and engage in the network’s development.

We are already looking forward to 2018’s conference in Dublin!

 

Auctions set to generate cash cows

October 30th, 2017

Two livestock auctions hope to hit the hammer price of £50,000 to help purchase a new portable echocardiogram machine for the new Children’s Heart Centre currently being developed at the Royal Belfast Hospital for Sick Children. Markethill Livestock Market and Ballymena Livestock Mart in association with Gleno Young Farmers will each hold a Christmas Show and Sale of beef cattle, prime lambs and an auction of donated items to raise funds for the charity.

Shaun Irvine from Ballymena Livestock Market, Little Grace Powell with her dad Richard, Lynn from Children’s Heartbeat Trust and Hampton Hewitt from Markethill Livestock Market.

 

This ambitious target will help leading children’s charity Children’s Heartbeat Trust in their work supporting local children and young people living with heart disease in Northern Ireland. The charity has been involved in the development of the Children’s Heart Centre since it’s conception and will provide financial support to kit out and create a world class, child and family-centred environment within the new centre.  In addition to this, the charity also aims to fund a new echocardiogram machine costing in the region of £50,000 with the help of the local farming community.  The funding of this new piece of equipment is crucial in ensuring that heart children are receiving the best quality treatment possible in a purpose built centre.

 

Farmers from across Northern Ireland are set to flock to the Markethill Auction on Thursday 23rd November at 7pm, and Ballymena Auction on Thursday 30th November at 6.30pm.

 

The fundraising idea came from Richard Powell, from Keady, whose daughter, Grace, has Congenital Heart Disease (CHD). Grace, who is now 8, was diagnosed during a neonatal scan and underwent surgical procedures at three and six months of age, before undergoing major heart surgery at the age of 5.

 

 

Richard’s family business, WK Powell & Son along with continued support from many customers, has helped raise funds for Children’s Heartbeat Trust over the past six years with the sale of various cattle. But this year he wanted to do even more, and has teamed up with local Livestock Markets to hold two charity auctions.  Richard has already pledged the first auction prize, on behalf of all who have supported his family business in Keady by generously donating a Charolais heifer for each of the auctions.

 

Speaking at the launch Richard said:

“The Children’s Heartbeat Trust has given our family so much support and help since Grace was born, and throughout her surgeries and treatment. We’ve helped raise funds each year through the sale of various cattle but on hearing about the development of the new Children’s Heart Centre, we wanted to do that bit more.  I approached Hampton at Markethill Mart with the idea of holding an auction to raise additional funds for the charity. Hampton came back with the suggestion of teaming with Shaun from Ballymena Mart to raise the target of £50,000.

I would sincerely like to thank Hampton for his full input and backing; and to Shaun for teaming up with us to raise the fund needs for this vital piece of equipment.  Adrian Cassidy, a friend has also got behind our fundraising by running the Dublin Marathon to raise funds towards our target. I’m grateful for the generous support received to date and with everyone’s input I have no doubt our target can be achieved.”

 

The Powell Family helping to launch the event

 

Lynn Cowan, Children’s Heartbeat Trust Fundraiser, said:

“The new Children’s Heart Centre will be a dedicated centre for children with CHD right across Northern Ireland, and will help ensure that they receive the best possible care. We are indebted to Richard along with both Ballymena and Markethill livestock markets and Gleno Young Farmers for their incredible support in funding the new echocardiogram machine – an absolutely vital piece of equipment for all cardiac children. Richard and his family have been so incredibly supportive of the charity’s work, and we are deeply grateful to the markets for joining with Richard to facilitate the auctions, and everyone who has donated auction items.”

 

An online donation page has been set up for anyone wishing to support this event. Please visit:

http://uk.virginmoneygiving.com/LivestockAuctions

 

Further information and updates on the Christmas Show, Sale and Auctions can be found on both Ballymena Livestock Market facebook page and Markethill Livestock Facebook page. 

WIN Tickets to see Queen & Adam Lambert!

October 26th, 2017

Children’s Heartbeat Trust is delighted to have received 4 Executive Box Tickets to see the iconic Queen and Adam Lambert at the SSE Arena. Could you be a winner?

 

Generously donated by Hireco NI you could win this amazing prize (worth over £800) just by donating £10 in support of our services.

Simply text the word QUEEN to 84902 which will entry you into the competition and automatically make a £10 voluntary donation to the charity.

Please read our Terms and Conditions before entering the competition:

  • Supporters are charged their standard network rate per text sent (check with your network provider for exact amounts)

  • Supporters voluntary donation of (£10) will also be taken from their phone credit or phone bill.

  • Children’s Heartbeat Trust receives 100% of your donation

  • You must be 18 years old or over to send a text donation to enter this competition.

  • You must obtain permission from the bill payer before sending a text message.

  • You can only donate from a UK mobile phone number.

  • If you are outside the UK but still sing your UK registered mobile phone number you may incur additional charges to send a donation text.

  • You can entry the competition up to 3 times. If you entry above this you will receive a text to say you have reached your limit and you may still incur your standard network charge  for the text.

  • Children’s Heartbeat Trust does not accept any responsibility whatsoever for any technical failure or malfunction or any other problem with any telephone, telephone network or line, system, server, provider or otherwise which may result in any text being lost, delayed or not properly received.

  • The competition closes on Thursday 16th November 2017 at 5pm.

  • Texts received after this date and time will not be counted but may still be charged.

  • The winner will be generated at random and contacted on Friday 17th November 2017.

  • SMS service provided by instaGiv. instagiv is a trading name of Txt2give Limited, registered under Company No.NI073911

  • Your data will be handled in accordance with the Data Protection Act 1998.

  • Please note we will not pass your mobile phone numbers on to any third parties.

  • Helpline number: 028 9031 2228 or email admin@childrensheartbeattrust.org