Archive for the ‘News’ Category


Tuesday, February 2nd, 2016

Chidren's Heartbeat Trust Website Graphic-20-01-16-v2












As part of Heart Week (8-14thFebruary) we are wanting to help raise awareness and funds for local children living with heart disease in Northern Ireland by ROCKING RED!

We are encouraging as many people in work, schools, colleges, playgroups, gyms or wherever they’ll be on Friday 12th Feb to wear red and donate to Children’s Heartbeat Trust.  All shades of red are welcome and if Friday 12th doesn’t suit, you can hold it anytime which best suits you – just let us know.

 There are lots of  ideas which you can do to add to you Rock Red Friday:

Wear Something Red: socks, tie, hairband, shoes etc

Red Fancy Dress: Spiderman, Power Ranger, Little Red Riding Hood…

Red Lunch Day: Bring something Red in your lunchbox

Red Baton Relay: Organise a Red Run around your school/playgroup grounds

Red Velvet Cup Cake Sale: Get colleagues, staff or friends to bake some yummy buns

All your fundraising from Rock Red Friday will be greatly appreciated and will help us to make a difference to local children and young people living with heart disease in Northern Ireland. No amount is too little so whatever you raise will go a long way!  THANK YOU!

To take part, please contact Lynn on 028 9031 2228 or email for your Rock Red Fundraising Pack!


02n February 16 - Picture by Darren Kidd / Press Eye.

Kelsie Robinson launching Rock Red at the City Hall- Picture by Darren Kidd / Press Eye.

Paediatric First Aid in Enniskillen

Tuesday, January 26th, 2016

Bandage 1

Our next Paediatric First Aid Training is happening in Enniskillen on Saturday 12th March 2016!

This is a fully certified course and is free to any of our heart families over the age of 16. The course will teach you a basic knowledge of paediatric first aid and we can guarantee you will have fun getting to grips with bandages and fake casualties along the way!! Booking is essential, please see below for further details;

Saturday 12th March 2016

9am – 5pm

Enniskillen Business Centre

21 Lackaghboy Road, Enniskillen

Email to book your space! 

Information from Family Engagement Group

Monday, January 25th, 2016

All-island Congenital Heart Disease (CHD) Network

Family Engagement Group

Update from the Family Engagement Group

In October 2014 the Minister of Health in Northern Ireland and the Minister of Health in the Republic of Ireland made a joint policy statement agreeing that children’s paediatric cardiology services should be delivered across an all island CHD network.   This agreement was reached following a report from an International Working Group chaired by Dr John Mayer from the Boston Children’s Hospital which set out fourteen recommendations on the development of this single congenital cardiac service. You can read the report hereinfo icon

Recommendation 2 was the establishment of a ‘Family Advisory Group with representation from both jurisdictions that will meet at least quarterly that will include clinical nurse specialists and other family support staff to provide direct input for the Governance Committee’.

From this, the Network Board set up a Family Engagement Group to engage with and represent children and young people with heart disease and their families within the all island CHD network.  The Co-Chairs of this group also sit on the Network Board and are Sarah Quinlan from Children’s Heartbeat Trust and Margaret Rogers from Heart Children Ireland.

Simply put, the Family Engagement Group is here to ensure that heart families are at the centre of any decisions or processes put in place during the development of the network.

Sitting on this group are;

Cardiac Nurse Specialists from Clark Clinic at the Royal Belfast Hospital for Sick Children (RBHSC) & Our Lady’s Children’s Hospital in Crumlin (OLCHC).

Clinical Psychologists from RBHSC and OLCHC

Family representatives from 3 charities;

Children’s Heartbeat Trust     –    028 9031 2228

Heart Children Ireland        –            (00 353 1) 8740990         

Heartbeat NI –           078 0137 0297

There will also be a number of sub-groups developed to make sure that we are hearing from as many patients and families as possible – Family Focus groups, Young Person’s group etc.

Communication and information will be the key focus of this group – both communicating developments and practical information about the network to families and facilitating feedback, experiences and recommendations concerning the service to those delivering it.

By spring 2016 we hope to have a Network Board website and social media in place to allow for a streamlined central source of information for families across the island. We will also be putting in place the initial stages for engagement and feedback mechanism.

Whilst this is being developed we would encourage any families with thoughts, ideas or feedback about the all-island network services to get in touch with your clinical nurse specialist or any of the three charities noted above.

Family Engagement Group

Calling all young artists – help us Design a Logo for the Children’s Heart Network Services between Belfast & Dublin!

Monday, January 11th, 2016

I love artCHD Network Board


The Family Engagement Group are holding an art competition to design a logo for the All Island Congenital Heart Disease Network. The name is very long so we need a logo that will easily help people know what we are talking about.

What are we talking about? When completed the all island congenital heart disease network will fully link up the two children’s hospitals with congenital heart services in Northern Ireland and Republic of Ireland so that nearly all children and young people needing heart surgery will be able to receive it on the island.

The competition has three age categories

4 – 7 years old

8 – 11 years old

12- 16 years old

The logo design can use any colours or materials you like and take any shape that you want.

There will be winners in each category and one overall winner!    Each winner will receive a £50 Voucher.

The overall winning logo will be used as inspiration to create the new all island CHD Network logo.

Include your name, age and a contact telephone number either on the front or back of your entry

Return your entry to:  Children’s Heartbeat Trust, Howard Building, Twin Spires Centre, 155 Northumberland St, Belfast BT13 2JF

Return entry by Wednesday 17th February 2016

We are super looking forward to seeing your entries!

Valentine’s Ball for CHT

Monday, January 11th, 2016


Our Belfast Group are organising a Black Tie Valentine’s Ball which will be held in the Hilton Hotel in Belfast on Saturday 13th February.

The evening will include a 3 course meal with live band, auction and raffle! What a great way to spend Valentine’s with friends and family whilst supporting a local children’s heart charity.

Tickets are £45 and can be booked by calling 028 9031 2228 or emailing


Charity Fitness Challenge

Monday, December 21st, 2015

Looking to get active in the new year? Then this is the perfect kick starter for you!

To book you place, please contact Gym Co on the number below, as spaces are limited.

Please click on the poster for further details



Festive Fun!

Wednesday, December 9th, 2015

CHT Grp Shot

Big Thank you to everyone that came along to our CHT Christmas Party on Sunday 6th December at Hilton Templepatrick. It was brilliant to see so many of our lovely heart families there and what a great opportunity to show off this year’s Christmas jumpers!


Caolan and Catherine Ward - Culmore LDerry

We had a fantastic day filled with plenty of Santa’s little helpers making Christmas crafts, giggles galore with Louie the Entertainer, lots of festive treats and activities and we even got a very special visit from Santa himself……thankfully we are all on the nice list!


Looking forward to our day at the panto on Sunday 13th December at the Waterside Theatre in L’Derry but if we don’t see you there we wish you all a very Merry Christmas and a Happy New Year!

CHT Team xx

061215BT1_0002 061215BT1_0010 061215BT1_0014 061215BT1_0019 061215BT1_0025 061215BT1_0042 061215BT1_0005 Callan Lavery - Ballyclare Carolanne and Carter McBride - Armagh Katie Hull - Maguiresbridge co Fermanagh Tilly Greenaway - Portadown

Help us this #GivingTuesday

Wednesday, November 25th, 2015

GTNI-logo1 (2) (1)#GivingTuesday (1st December in 2015) is recognised as a global day of giving. After the sales of Black Friday and the online shopping boom on Cyber Monday, #GivingTuesday is an opportunity to come together to show the world why it’s good to give!


Whether it’s making a donation, volunteering your time or just spreading the good word of a charity, #GivingTuesday is a call to action for everyone who wants to give something back.


Children’s Heartbeat Trust is excited to be part of this year’s campaign and  we want you to help us raise awareness of what we do via the following methods:


#SeasonalSelfie – Show us some love on #GivingTuesday by tweeting and posting your seasonal selfie and texting HEARTS to 70660 to donate £5 to the charity.  Please include #SeasonalSelfie & #GivingTuesdayNI in your post.

If you wish you can tag other people in your post who you would like to nominate to continue the #SeasonalSelfie for CHT!

Dont forget to post it on Tuesday 1st December (#GivingTuesday) for us to share!  It can be anything that relates to Christmas.  From a christmas jumper selfie, to eating a mince pies – let your imagination run wild! It’s all a bit of festive fun to help raise awareness for what we do.

The Gift of Time – #GivingTuesday is also an opportunity for you to give your time to a charity through volunteering.  We have a number of volunteering opportunities coming up to Christmas.  If you would like to donate your time to CHT, then please get in touch for further information on our volunteering opportunities.



Shop with Children’s Heartbeat Trust in mind – December sees us all shopping for Christmas Presents.  We’ve teamed up with Stella & Dot and and for every purchase from their online trunk show and website,  a % will be donated to the charity!

There lots of lovely ideas, so be sure to pop over to the following links to check out what’s available!

Stella & Dot Jewellery Online Trunk Show – click here

A Little Website – click here




Jake’s Ladybird Bags for travelling heart families launched at Stormont All Party Group

Tuesday, November 24th, 2015

‘Jake’s Ladybird Bags’ in memory of two year old Jake Flaherty, who passed away due to congenital heart disease, designed for families travelling with their children to hospitals in England and Dublin.

 Portadown mum Julie Flaherty, whose two year old son Jake passed away in 2013, was in Parliament Buildings on Monday 23 November at the All Party Group on Congenital Heart Disease to launch the first ever dedicated support packs for families travelling out of Northern Ireland for heart operations.

‘Jake’s Ladybird Bags’, named in honour of little Jake are the first specialised kits for families travelling to hospitals outside of Northern Ireland for treatment. The bags include a range of useful supplies including toothpaste, socks and toiletries. Julie hopes that the child-friendly design, inspired by Jake and his favourite animal, will give comfort to many families in the years ahead. She said:

“Jake’s Ladybird Bags can provide comfort and support for parents and children as they go through difficult hospital visits away from home. Jake’s spirit was an inspiration to us all and I hope this will continue to let families going through what we went through know someone is thinking of them.”

Speaking at the launch, Sarah Quinlan, Chief Executive of Children’s Heartbeat Trust said: “These bags will provide practical support to families from Northern Ireland who have to travel to hospitals in Dublin and in England for treatment for their young children. Thanks to Julie’s generosity, Jake’s memory and inspiration will travel with families today and in future as they take these difficult journeys.”

Sarah was speaking as the All Party Group on Congenital Heart Disease met at Stormont for its final meeting of 2015. This followed a meeting between the charity and Health Minister Simon Hamilton last week. At the meeting Sarah outlined the extent of the problems with waiting lists, the continued delay in implementing both the all-Island congenital heart disease networkand a Children’s Heart Centre in Belfast.

The meeting was attended by Robin Swann, Cathal O’ hOisin, Joanne Dobson, Maeve McLaughlin and Rosie McSorley

If you are a family with a heart child travelling to England or Dublin or you know of one, contact Children’s Heartbeat Trust by calling 028 9031 2228 or e-mailing to get your Jake’s Ladybird Bag.


Robin Swann

Chair of the APG Robin Swann with Julie Flaherty from Jake’s Ladybird Bags and Sarah Quinlan from the charity

General 3

Chair of the Health Committee, Maeve McLaughlin congratulated Julie Flaherty on her success with Jake’s Ladybird Bags

Minister of Health Simon Hamilton MLA meets the charity

Friday, November 20th, 2015

Earlier this week Sarah Quinlan and Chair of Children’s Heartbeat Trust Professor Nichola Rooney met the Heath Minister Simon Hamilton MLA. The charity highlighted a range of issues including timelines for a future Children’s Heart Centre in Belfast, the implementation of the All-Island Children’s Cardiac Network and waiting lists.

The Minister undertook to further explore funding for the Centre, to continue work with Southern colleagues to ensure effective and timely implementation of the neMinister Hamiltontwork in coming years as well as ways to reduce the unacceptable waiting lists.

We will continue to represent our heart children and families and bring these important issues to the attention of the Health Minister and other relevant parties in our ongoing aim to improve children’s heart services in Northern Ireland.