Archive for the ‘News’ Category

Mum’s Pamper Day

Tuesday, May 10th, 2016

Sunday 8th May saw 21 wonderful heart mummy’s getting a day off as we hosted our Yummy Mummy Pamper Day. They got to enjoy nail manicures, massage therapy, hints and tips from a Colour and Style Image Consultant and make a unique piece of beautiful jewellery to take home. This was all topped off with High Tea and spectacular views from the Penthouse Apartments in the Obel Building, Belfast.

A wonderful day of relaxation was had and we look forward to next year’s event already.

We must express our heartfelt thanks to Barista Coffee House at Loughshore Park, Apple Apartments Belfast, Honeyz Beauty Salon, Personally Beaded, House of Colour Monaghan Louth and Busy Bee’s NI.


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Information about Appointments & Reviews

Monday, May 9th, 2016

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Dr Casey (Lead Clinician at Clark Clinic) has provided this information about waiting times for appointments and reviews as we have had lots concerns and queries from heart families about this issue.   If you have any further queries don’t hesitate to contact us and we will do what we can to help.  CHT Team





Teens Summer Blast 2016 – Book your place now!

Saturday, May 7th, 2016


We’re excited for our next Summer Blast for our Teens which will take place at Todds Leap Activity Centre in Omagh on Saturday 13th & Sunday 14th August. You will be getting to grips with off-road trucking,  body zorbing, bungee run and much more!! TO

BOOK CALL 028 9031 2228 or email



Fab Fundraiser Friday 6.4.16

Friday, May 6th, 2016

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Courtney & Andrea Gallagher

Andrea and Courtney Gallagher are pictured with their Principal from Strabane Academy presenting £764.59 for the charity. The girls held a series of fundraising activities throughout the year to raise this great amount for our work! Well Done.

Joe Donnelly

Sarah is pictured with Joe Donnelly who held a charity football tournament a Girdwood Community Hub. Over £1,452 has been raised with more money coming in! Thank you soo much for everyone’s support to helped and took part.

Portadown College

Pupil Kayla McCann is pictured with Principal, Mr Simon Harper from Portadown College presenting Lynn Cowan with a cheque for £315.00. The money was raised from a table quiz and the pupils got to choose which charities they would like to support.

Sion Mills Primary

Pictured are pupils from Sion Mills Primary who held a #RockRedFriday event for the charity raising £260. Well done to all involved.

Strabane College

Courtney and Andrea Gallagher are pictured with Principal of Strabane Academy Mr Hampton presenting £225.34 for the Children’s Heartbeat Trust. The money was raised from the School Carol Service at Christmas. Thank you to everyone for their support.

Toreagh Primary - Website Only

Toreagh Primary School in Larne choose Children’s Heartbeat Trust as their charity of the year. Pictured is the School Council presenting Lynn with a cheque for £800 from their year’s fundraising. Thank you to the school and families for their support.




Wednesday, April 20th, 2016

The Ortus Group chooses Children’s Heartbeat Trust as Annual Charity Partner

The Ortus Group has announced it has partnered with Children’s Heartbeat Trust in 2016/17 to raise vital funds for the charity.

Ortus run a number of charity and community events throughout the year for different charities but this year has decided to focus on an annual cause within the community.  The company is planning on organising a range of internal and external events to support the annual contribution as well as partaking in Children’s Heartbeat Trust campaigns.

In 2015, Ortus’ 8th Annual Charity Golf Day took place for Children’s Heartbeat Trust raising £7,000 for the charity. The funds were used to:

  • Provide 83 confidential family counselling sessions which are available to all heart families through Carecall.

  • Furnish two brand new respite caravans in Newcastle and Ballycastle so that heart families can get a break from the stresses of daily living with heart disease and the hospital environment.  Fifty-seven families will enjoy staying in them this year.


Lynn Cowan, Fundraiser for Children’s Heartbeat Trust commented:

“The support from Ortus has been hugely beneficial to date and we are delighted to have been named as the first annual charity partner with the company.

The funds allowed us to continue providing our support services to the many children and young people in Northern Ireland living with heart disease.  As well as raising money, Ortus have also helped us to raise awareness of heart disease in children and our work in local communities across Northern Ireland.  We look forward to working with them and developing our services with their support.”



Following this event, and seeing the impact the funds have had on so many Northern Irish Families Ortus CEO, Seamus O’Prey, is pleased to partner with the charity:


“As a social enterprise, Ortus are focussed on regeneration of the local area, providing mentoring and training to businesses at any stage of their cycle and supporting those within our community. Therefore, raising funds for other charities and community groups and giving back is central to our social ethos.


After the impact our support in 2015 had upon Children’s Heartbeat Trust we are delighted to name them as our first Annual Charity, supporting their work through a number of different events throughout the year.”


For more information on Ortus please contact Sheila Harper. Email: or Tel: 02890 311 002.

 Ortus charity partner


Fab Fundraiser Friday 15.4.16

Friday, April 15th, 2016

It’s Friday again and another chance to say a big heartfelt thanks to everyone who has been supporting us lately! You’re all amazing and we can’t thank you enough! We hope everyone has a Fab Friday and enjoys the weekend ahead! 🙂

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Doherty 3

Damien and Hayley Moore-Doherty are pictured with their kids Dakota and Dexter presenting £4,400 to staff nurse Alison Turner. The money was raised from the annual Tattoo event in Derry which has been running for the last four years. Some of the money raised was used to buy two hudle2’s loaded with games and movies for use on Clark Clinic, along with playstation 3 games and lots of other items for the ward. Over the past four years the Doherty Family have raised £17,617.70 and we greatly appreciate their support!

Powell Family

The Powell Family, Richard, Rhonda, Ben, Harry and Grace are pictured with Donal McGreevy from Bank of Ireland in Keady presenting Lynn with a Cheque for £2,954.51. The money was raised from Bank of Ireland Hampers and the sale of one of Richard’s Cattle at a local livestock sale. Thank you to everyone for your generosity!

Glenda Allen 2

The Allen Family – Glenda, Steven and baby Faith are pictured presenting Lynn with a cheque for £1,211. The money was raised from the family hosting a dinner party for family and friends with donations to the charity. Thank you so much for your support!

Laurie & Hannah Martin

The beautiful Martin sister’s Lawrie and Hannah are pictured presenting Clark with a big cheque for £1,690.00. The money was raised from a fundraising night in Comber Rec in aid of Hannah whose been supported by the charity. Thanks to all who supported the night!

Lislagan Primary,Ballymoney

Pupils from Lislagan Primary School in Ballymoney are pictured presenting Lynn with a cheque for £575. The money was raised from the school holding a Valentines Disco which was organised and ran by the P7 pupils. Well done to all involved!

Papa Browns - Easter Raffle

Kris Magowan, Rose McCourbie and little Eva McCourbie are pictured presenting £160.36 on behalf of staff and customers at Papa Browns in Carrickfergus. The money was raised from an Easter Raffle. Thank you!

St Joseph's Lisburn

Teacher, Melissa Toman is pictured with pupils Eva and Niamh from St Joseph’s Primary School, Lisburn presenting £300 for the Children’s Heartbeat Trust. The school held a wear red day to help raise awareness of congenital heart disease in children. Great Work!

Paediatric First Aid Training – Saturday 21st May

Tuesday, April 12th, 2016

We are delighted to be offering another paediatric first aid training course in association with REC First Aid Trainers N.I.

This course is FREE and available to any heart parents in Northern Ireland whose child has heart disease. The course runs for one full day and will include training on the use of a defibrillator.

Saturday 21st May – 9am to 5pm

Banbridge Enterprise Centre, Scarva Road, Banbridge

Tea breaks and lunch will be provided to all participants on the day.

Booking is essential so if you are interested please get in touch with Lynn via email or call 028 9031 2228 / 074 8337 4910.

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Mum’s Pamper Day – Sunday 8th May

Tuesday, April 5th, 2016

Calling all Heart Mums!

Come along and join us for an afternoon of indulgence with the most amazing views over Belfast from the Penthouse Suite!


Relax, enjoy afternoon tea, scones, massages and nail bar! A lovely pamper day for our heart mums!

Booking is essential so if you would like to go please contact Alison on or call 028 9031 2228.


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Fab Fundraiser Friday 25.3.16

Friday, March 25th, 2016

Once again we are indebted to everyone who has donated to our work, whether it be popping change into a charity collection box, holding an event or sponsoring someone. Thank you all for your continued support. Here are just some of the supporters we caught on camera! 🙂 x


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St Patricks Legamaddy

Anna Tumelty is pictured with her class at St Patrick’s Primary School in Legamaddy presenting Lynn with a cheque for £150. They held a Rock Red Day to raise awareness of heart disease in children.

YPI St Ciarans College

Olivia, Megan and Leona from St Ciaran’s College are pictured with Leona’s sister Sinead. The pupils took part in the YPI Project and chose Children’s Heartbeat Trust as their charity. The girls got through to the finals with their presentation about Sinead and how she and the family have been supported by the charity. A huge thanks must go to the girls on helping us to raise vital awareness of our work and about congenital heart disease.

Memorial Darts Match

A memorial darts match was held in Aidan O’Driscoll’s memory for Children’s Heartbeat Trust. £615 was raised and pictured is Aidan’s kids (centre) Odhran and Hannah along with Gerard Grimes from The Mill Wheel presenting the cheque to Cara Monaghan (left) and Mary Jo McCourt and her daughter Cara. Both Cara’s are local to the area and have a congenital heart defect which is why they choose to support the charity

Holybush 1

Caolan Ward is pictured with pupils from his class at Hollybush Primary School presenting Lynn with a fundraising cheque for £590. The money was raised by the school wearing Red to raise awareness of heart disease in children and Caolan’s mummy, Jennifer (pictured far right) also held a coffee morning. Thanks must go to everyone who supported the school and Jennifer with their events!

Teen’s transition information event – Cafe Renoir

Thursday, March 17th, 2016

A massive thank you to all who attended our first teens information event in partnership with the Belfast Trust. This event was a great success and a wonderful opportunity for teens and parents to hear first hand how transition from the children’s to the adult’s service works and the perfect time to ask live questions to the team. If you would have liked to attend the event but were unable to, we made some notes!! If you would like a copy, please email us at


In attendance was our new family support worker. He is affectionately known as the ‘New Cathy’ but his real name is Ross.


The Clinical Team From left to Right; Dr Chris Lockhart – Congenital Cardiologist Jan Gordon – Adult congenital heart disease clinical specialist Catherine Faulkner – Paediatric congenital heart disease clinical nurse specialist and Dr Brian Crossan – Paediatric congenital cardiologist They all described how they wish for the transition service to be smooth and seemless. Dr Chris assured families that as a team, they meet regularly for information sharing.


Our guest speaker Nadine McGaffin sharing her life experiences with moving from Childrens to Adult services as well as how she navigated through schoold, University and work.



Break Out session: Discussing new App for Teens



Some of our Teens enjoying getting together at the event.