Archive for the ‘News’ Category
Children’s Heart Centre needed to ensure a strong future for children’s heart services in Northern Ireland.
A stand alone Children’s Heart Centre is key for the delivery of care for children with congenital heart disease, that was the message delivered today to MLAs at the NI Assembly All Party Group on Congenital Heart Disease. The plan for a Children’s Heart Centre for Northern Ireland has been developed by the Children’s Heartbeat Trust, who presented drawings of the proposal to the members at Parliament Buildings as part of Heart Week, the annual awareness week for congenital heart disease.
Attendees of the event heard from Tracey Wall, Divisional Nurse Manager at Our Lady’s Hospital, Crumlin who spoke of the benefits of a similar centre in Dublin, while Dr Frank Casey, Head of Paediatric Cardiology at the Clark Clinic, outlined the plans and the need for a NI Children’s Heart Centre.
The Children’s Heart Centre would develop and enhance the cardiology expertise and care that a child living with congenital heart disease needs, other than surgery. It would house a dedicated outpatients, facilities, services, training and support that cannot currently be met within the confines of the hospital at the moment.
Speaking at the event, Sarah Quinlan, Chief Executive, Children’s Heartbeat Trust, said: “The paediatric cardiology service in Belfast now needs investment and development. Families of children with heart disease have been promised an improved local service and we need to see that commitment being delivered. A purpose built Children’s Heart Centre in Belfast will allow delivery of a first class care for every child with a heart defect across Northern Ireland, as well as freeing up resources in the Royal Belfast Hospital for Sick Children.”
“Our vision for the Children’s Heart Centre encompasses all the care needs that children and their families require other than heart surgery and as they grow up. This will include regular appointments with specialist staff, investigations and tests. We understand that this will require capital expenditure, but this should be recognised as a long term investment in a service that hundreds of children currently access and that needs crucial support and development to maintain its current high standards in the face of losing its surgical element.
Happy Heart Week! Monday 18th – Wednesday 24th May marks our annual Heart Week, this year we are kicking it off with a bang with our ‘Ever been Heartbroken’ posters and billboards in towns and cities across Northern Ireland. If you see one near you please take a picture and post it on our Facebook, Twitter or Instagram page to help raise awareness of children with heart disease in NI. This is only the beginning – there’s lots going on this week so keep an eye on our Facebook and Twitter to get involved and don’t forget to use our hastags….. #niheartstars #heartchain
Facebook: Childrens Heartbeat Trust
We are super excited to share details of our upcoming family fun days this summer and can’t wait to see lots of our fab heart families there!
We will be visiting W5 (Belfast) on Saturday 27th June and The Jungle (Magherafelt) on Saturday 22nd August. These Summer fun days are open to all the familiy and are a great way to meet other children, young people and families affected by heart disease and living in Northern Ireland. Please see posters for further details and email cathy@childrensheartbeattrust to book!
As part of Heart Week the All Party Group on Congenital Heart Disease are holding an Information Event about what the new Children’s Heart Centre for Northern Ireland should look like. With Dr Frank Casey and Tracey Wall from OLCHC speaking this will be a really important and informative event to show exactly what our children’s heart services in N.I need! There are limited places available so let us know if you would like to attend.
We had over 120 people take part in the Belfast City Marathon events yesterday – the fun run, 8 mile walk, relay and full 26.2 marathon. The sun was shining, a cool wind was blowing and the supporters lined the streets to wish them all well. It was a fantastic day cheering from the sidelines and we were proud to see so many of our tshirts and race vests on display. Thanks to each and every one of you for giving your time and energy to raise both money and awareness for the charity.
Friday 22 May is our annual Wear Your Heart on Your Sleeve fundraising day!!
As part of our Children’s Heart Week, on Friday 22 May we hope to see lots of people wearing our fabulous red wristbands. You can help us raise awareness and funds by organising a Coffee Morning, Tea & Cakes, Wear Red to school or work & selling our wristbands!
To get a fundraising pack with posters and the wristbands and boxes please contact us below or email firstname.lastname@example.org
We are very sad to announce that Dr Connor Mulholland is retiring as Chair of the charity’s Board of Directors. Dr Mulholland has been a driving force behind the charity since its beginning in the early 1980’s and his outstanding leadership and commitment to the charity and our heart families is deeply appreciated.
Fellow Director and former colleague, Paediatric Cardiologist Dr Brian Craig, has below shared an overview of the role and positive impact Dr Mulholland has played both for the charity and paediatric cardiology in N.Ireland.
“In 1976 Dr Connor Mulholland was appointed the very first dedicated Paediatric Cardiologist in Belfast. The early years of his work were devoted to stabilising and making an accurate diagnosis in many ill infants and older children with heart disease. To this end he created a dedicated inpatient facility and held outpatients clinics both at the Royal Belfast Hospital for Sick Children and the Ulster hospital in Dundonald.
In 1983 he had the vision to encourage parents to form a support group called Heartbeat and he became a founder trustee. One of Heartbeats first public roles was to successfully lobby Stormont Officials to create a second Consultant Post in Paediatric Cardiology which was appointed in 1986.
The 1980’s saw major advances in diagnosis and treatment for infants and children with heart disease, with the establishment of interventional cardiac catheterisation and a parallel improvement in the range of surgery available and in the outcomes following surgery. Dr Mulholland had the foresight to appoint a clinical psychologist to the cardiac unit which became the springboard for collaborative research projects into the important psychosocial aspects of congenital heart disease. Guided by his desire to improve services for children with heart disease the charity looked to support the major Congenital Heart Intervention Project (CHIP) and the development of telemedicine placing Belfast at the leading edge of using technology to deliver patient care.
In 2003 Dr Mulholland was appointed Chairman of the Trustees of Heartbeat and was instrumental in appointing a full time Executive Officer and overseeing a change of name to the Children’s Heartbeat Trust, to reflect the aims and work of the charity. He provided important support and continuity throughout this period of change as the charity developed to better meet family support needs. Throughout the recent campaigning Dr Mulholland was a determined and vocal advocate for children and families, providing important advice to the Minister of Health.
Throughout three decades Dr Mulholland has encouraged, supported and led the charity through times of political uncertainty and periods of financial austerity in Health Service funding. His voice has at all times been one of reason and he has never failed to support those for whom the charity exists – children and young people with heart disease and their families. As he steps down as Chair this year this is the legacy he with others has created and a vision that we must maintain.
Following a few technical problems with our Facebook account, we have had to merge both Childrens Heartbeat Trust profiles to one page. Please take a moment to Like and Share our new Childrens Heartbeat Trust page!
We are now back on facebook but are still working to align our closed groups with our new page, we hope to have this corrected ASAP but if you need to contact us in the meantime please use the details below.
T: 028 90312228
T: 075 84164815
T: 074 36589480
CHT Team : )
Our annual Children’s Artbeat Competition is here again! The competition is open to all children aged 4-11 and we have 5 fantastic prizes up for grabs for the lucky winners. Children’s Heartbeat Trust are asking each child to design their own special heart using the template provided. Let your imagination go wild with bold colours, materials and textures. The competition closes on Friday 24th April 2015 and entries will be featured in a special art exhibition during our ‘Heart Week’ which runs this year from 18th-24th May. Why not get your local schools, community or youth clubs involved and help us raise awareness of children with heart disease!
As Mother’s Day is fast approaching we thought we would take the opportunity to treat our Heart Mums to a little pampering!
On Sunday 22nd March we are hosting our first Pamper Party in Belfast. This will be the perfect setting to enjoy some well-deserved “me time” whilst getting to know other Mums that have children and young people with heart disease.
This event is completly free of charge although places are limited and booking is essential! Please see the poster below for booking details and further information.
Look forward to seeing you there!