Archive for the ‘News’ Category

FAB FUNDRAISER FRIDAY 26.5.17

Friday, May 26th, 2017

We continue to be indebted to every single person who donates and raises awareness of our work with local heart children. Thank you doesn’t seem enough in acknowledging the true difference you are making to heart families in need of our support. 100% of our funding comes from local businesses, individuals, communities and corporates across NI and we are very proud of all the support we receive. Here’s just another snippet of some of the things that have took place in aid of CHT this sunny Friday. Wishing all our supporters and wonderful heart families a happy weekend in the sunshine.

Mums Pamper Party 2017!

Friday, May 26th, 2017

We had such a great day at our Pamper Party on Sunday 21st May at the luxurious penthouse suite of Obel Tower in Belfast. It was a pleasure to treat some of our lovely heart mums to a little bit of pampering and a lot of sweet treats whilst they got to know other local heart mums. We had a craft workshop, indian head massage, back and shoulder massage, nail painting and mini facials on the go which made sure everyone left super relaxed and with their own handmade picture as well as a few new friends. Huge thankyou to everyone that generously donated their time, goods and expertise to the event. CHT Team xx

 

 

2017 Summer Blast Residential

Friday, May 19th, 2017

Summer Blast is back!

We are so excited to announce our super popular Summer Blast overnight residential is open for registration!

If you are a teen aged 12-16 and living in NI with congenital or inherited heart disease then this is a weekend not to be missed! Summer Blast 2017 is a brilliant way to get to know other local young people living with heart disease.

The overnight residential will take place at Todds Leap in Omagh from Saturday 12th August at 10am to Sunday 13th August at 2pm. During Summer Blast there will be lots of outdoor activities on offer that you can take part in as a team or individual and we will head out to catch a film or a few games of bowling on the Saturday evening.

Summer Blast is FREE for Heart Teens living in Northern Ireland.

Contact Cathy for further details or to register. Places are limited so please don’t hesitate to get in touch.

Most parents prepare for first steps, Some prepare for first heart surgery

Wednesday, May 17th, 2017

 

Most parents prepare for first steps, Some prepare for first heart surgery

Every year 200 babies are born in Northern Ireland with heart disease, making it the most common birth defect in NI. That was the message delivered at the launch of Heart Week which is organised by the charity to raise awareness of congenital heart disease and the impact it has on children and their families in Northern Ireland.

The launch of Heart Week saw children with Congenital Heart Disease (CHD) and their families gathered in Belfast for a 200 red balloon event to mark the 200 babies born each year with CHD.

Speaking at the campaign launch, Sarah Quinlan, Chief Executive, Children’s Heartbeat Trust, said: “The birth of a baby is a wonderful and happy experience for families. However, over 200 each year in Northern Ireland will also be faced with the diagnosis of a congenital heart defect which will mean that rather than beginning to plan for baby’s first steps or first words, a number of these families will find themselves planning for the first heart surgery.

“Heart disease is the most common birth defect for children born here, and, while it can be detected during ante natal scans, it is also often not diagnosed until birth and on occasion not until days or weeks after birth. At this young age, these babies go through complex procedures, such as open heart surgery, interventions or having a pacemaker fitted. For parents of new born babies this a lot to deal with, particularly when it can mean travelling to England for surgery.

“HeartWeek aims to raise awareness of the prevalence of congenital heart disease and the work of the Children’s Heartbeat Trust, who provide support for these babies and their families, from the early days right through to their teenage years.”

In July 2016 Health Ministers Michelle O’Neill MLA and Simon Harris TD announced the commencement of the All-Island CHD Network for the treatment of children with congenital heart disease. The network will see paediatric cardiac surgery undertaken in Our Lady’s Children’s Hospital, Crumlin, Dublin, (OLCHC) with all other paediatric cardiology care taking place at the Royal Belfast Hospital for Sick Children.  As of March 2017 all urgent and emergency surgeries are taking place in OLCHC, and all elective surgery is scheduled to take place there by the end of 2018.

Ms Quinlan added: “Our goal is the development of facilities that will ensure a world class care pathway for all children born with congenital heart disease, including the development of a Children’s Heart Centre in Belfast as central element of a fully realised All-Island network.

“With over 200 babies each year born with a congenital heart defect it is crucial that these vulnerable children can access the best care and services possible.

The Children’s Heartbeat Trust is asking people to support HeartWeek on Facebook and twitter using the hashtag #200HeartBabies.

Youth and Family Support Worker

Tuesday, May 9th, 2017

We wish to appoint a Youth and Family Support Worker to develop and deliver support services for young people and families affected by congenital heart disease.

ABOUT THE ROLE

This post provides the opportunity for an enthusiastic, motivated and outgoing individual to make a significant difference to the young people and families the Children’s Heartbeat Trust support.  The individual will lead in the delivery of projects and services for young people with heart disease aged 11 – 18.

The role also includes developing Children’s Heartbeat Trust’s local family support groups and supporting local family support coordinators in the delivery of events and workshops across Northern Ireland.

You will have the opportunity to work on your own initiative but will be supported by a manager and enthusiastic volunteers to develop and deliver the youth and family support programmes.

We welcome dynamic and committed individuals to apply for this post and join the Children’s Heartbeat Trust team.

Essential Criteria includes

–       Third level qualification in relevant subject

–       Minimum of 2 years recent experience of working with young people in a support service setting

–       Hold a valid driver’s licence and have access to a car.

For an application pack please email admin@childrensheartbeattrust.org

Children’s Heartbeat Trust reserve the right to interview only those candidates who appear from the information provided to be the most suitable for the job.

We are an equal opportunities employer.

 

 

FAB FUNDRAISER FRIDAY 5.5.17

Friday, May 5th, 2017

It’s Friday and the sun is shining so we’re looking forward to a beautiful weekend and looking back on some of the fantastic fundraisers we have had recently. We’ve had a really busy year so far and we can’t thank you all enough for every single penny raised. Here’s just a snippet of just some of the wonderful fundraising that’s been going on! Don’t forget to let us know of any fundraising in aid of the charity. Hope you all have a fab weekend of BBQ’s and sunshine!

 

Farmyard Fun!

Friday, April 28th, 2017

Hunt out your welly boots….we’re off to the farm!

Join us at The Ark Farm Newtownards on Saturday 24th June for our first of two summer fun days. With farm tours, petting stations, quad rides and lots of outdoor play you would be a silly moo to miss it! See poster for details and contact Cathy to book. CHT Team xx

Heartbeats Spring 2017

Wednesday, April 26th, 2017

You can now view our much loved Heartbeats magazine online!

Click on the link below to read our Spring edition which is packed full of info about the All Island CHD Network, the new Children’s Heart Centre and waiting lists as well as dates for your diary, family stories and lots more!

https://view.publitas.com/childrens-heartbeat-trust/heartbeats-spring2017/

 

 

 

 

FAB FUNDRAISER FRIDAY 31.3.17

Friday, March 31st, 2017

 

 

It’s Friday so time for another big shout out to our wonderful fundraisers! Thank you from the bottom of our hearts for your continued support. Here’s a few we caught on camera 🙂 We hope you all have a great weekend.

Building work due to start for new Children’s Heart Centre

Wednesday, March 29th, 2017

2017 will see the development of a much-needed Children’s Heart Centre at the Royal Belfast Hospital for Sick Children.  This centre is a key component of the new all-island Congenital Heart Disease (CHD) network and is required to ensure the provision of high quality CHD services in Northern Ireland within the new North-South partnership.   The improved facility will deliver crucial aspects of the ongoing care for children with heart defects, including the provision of segregated specialist outpatient clinics, imaging services, day procedure cases, a research and telemedicine hub, as well as specialist diagnosis and treatment for babies and children.

Children’s Heartbeat Trust have been involved in the development of this project since its conception and have pledged to donate £100,000 to ensure the area is child and family focused, providing a world-class service to heart families across Northern Ireland.  The charity has previously delivered a similar project with the Children’s MRI Scanner Unit and has seen the positive impact additions such as sensory equipment, innovative lighting, bright murals and a child centred environment can make to a minimalist, clinical space.   Such child-friendly environments are proven to relieve the stress and tension of hospital visits for both the child and their families.

Work is due to commence in April 2017 and the first stage will be to build a separate administration block in the grounds of the RBHSC which will house all the administrative, specialist and consultant offices, as well as the tele-medicine and research hub, which are currently squeezed into the ground floor of Clark Clinic.  The second stage will then be an extension to the ground floor of Clark Clinic to accommodate the expansion as per plans below, however there will be no change to the Clark Clinic ward on the first floor.

We imagine there will be some disruption during this building work so keep an eye on our social media and website for all updates.