Archive for the ‘News’ Category

Fab Fundraiser Friday 2.10.15

Friday, October 2nd, 2015

A sunny Fab Friday to all our amazing families, friends and supporters. Here’s some more of our heartfelt thanks to our amazing fundraisers!




Buick Family
The Buick Family, Carol, Neale and baby Max from Antrim along with members of FC Moylena held a charity football match back in June. They raised an amazing £3,040. for CHT and are pictured presenting the proceeds to Lynn. The Buick’s son Max, was born with a heart condition and has had two surgeries since his birth and is doing great!
Danielle Keenan
Danielle Keenan is pictured with Lynn from CHT at Clark Clinic presenting a fantastic £1,880! This was raised from a 30day Yoga Challenge during the month of August and a sponsored climb up Mount Errigal with friends. smile emoticon Amazing. Thank you soo much.
Jackson Family
The Jackson Family held a charity Hog Roast Night and raised a fantastic £1,360. The event was in memory of Clare their daughter who would have been thirty this year and sadly passed away only days old of CHD. Thank you so much for you amazing fundraising.


Jo Campbell
Jo Campbell is pictured presenting £777.50 to Lynn. Jo recently took part in a Waterside Marathon relay team with Stephen Thompson and Ian Howard. Great work raising a fab amount!





Donnelly Group in Enniskillen are pictured presenting Lynn with a generous cheque for £1,445. The car dealership organised their annual charity cycle (47k & 90K routes) with over 85 people taking part. The event was a great success and we would like to express our sincere thanks to Donnelly’s for their wonderful support.

Family Conference 2015 Schedule – Book online now!

Thursday, October 1st, 2015

Below is the full schedule for our Family Conference taking place on Saturday 17 Oct at Lisburn Civic Centre!

This is your chance to meet experts in the field of congenital heart disease like Mr David Barron – leading children’s heart surgeon from Birmingham Children’s Hospital & Dr Shane McKee – renowned Genetics specialist at Belfast City Hospital as well as other key specialists!

There are still places left so make sure you don’t miss out by booking at

9.40: Registration

10.00: Welcome & Morning Session

3 x ‘Living with CHD’ Workshops
– Exercise and CHD – Dr Sinead Callaghan (Research Fellow, Clark Clinic)
– Family Wellbeing – Susan Harvey (Lead Counsellor, Carecall)
– Diet and CHD – Ciara McGrath (Dietician, RBHSC)

12.15 – Lunch

12.50 Afternoon Session

Keynote Speaker – Mr David Baron (Consultant Clinical Cardiac Surgeon, Birmingham Children’s Hospital

Keynote Speaker – Dr Shane McKee (Consultant in Genetics, Belfast City Hospital)

2.30 End

Childrens Heartbeat Trust 2014 Logo


Conquer the Castle Success

Monday, September 28th, 2015

Sunday 27th September saw 16 brave participants scale the heights of Belfast Castle for the first ever abseil for Children’s Heartbeat Trust.  The sun shone on us as everyone Conquered the Castle and made a difference to local children with heart disease in Northern Ireland.  Thank you to everyone for their support with this event.  If you would like to fundraise for us, please get in touch by emailing or call 074 8337 4910.  See below some of the photos from our fab day!



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Fab Fundraiser Friday 18.9.15

Friday, September 18th, 2015

It’s Friday which means time for a Fab Fundraiser post! A big heartfelt thanks to everyone who is fundraising for us at the moment! Here’s just a few of the things that have happened recently! There’s much more to come in the weeks to follow.


Alicia Hanna
Alicia Hanna along with her family and friends held a charity night recently in Newry and raised £545.00 for the charity. Alicia is pictured with her family presenting a cheque to Alison from the charity. Great Work!
Barrie Cochrane & Ellie
Barrie Cochrane along with this daughter Ellie presented Sarah with a cheque for £3,278. This fantastic amount was raised from a charity football match held back in June at Craigavon City Football Ground. The event was set up in memory of Barrie’s three children Aimee, Louis and Ruby who all sadly passed away a rare genetic heart condition. Barrie’s Family wanted to help others facing a similar situations and we are indebted to them all for raising this fantastic amount!
Joe McCrickard Birthday Bash
Joe McCrickard celebrated his 70th Birthday recently and in lieu of presents he asked for donations in aid of CHT. Joe is pictured with his daughter Aisling and Shea who required heart surgery and received support from the charity. Over £500 was raised and Joe would like to thank everyone for their generosity!
Nicola Morton
Lynn is pictured with Nicola Morton and her family presenting over £400 which was raised from the sale of wristbands. Well Done! Nicola’s youngest daughter Crystal had open heart surgery recently and is recovering well.

Leading childen’s heart surgeon, Mr David Barron is Keynote Speaker at Family Conference 2015

Tuesday, September 15th, 2015


Children’s Heartbeat Trust are delighted to announce that Mr David Barron, Consultant Clinical Cardiac Surgeon at Birmingham Children’s Hospital is a keynote speaker at our upcoming Family Conference 2014 on Saturday 17 Oct in Lisburn Conference Centre.

Mr David Barron is one of the UK’s leading children’s heart surgeons, operating on the most complex heart conditions with an expertise in Hypoplastic Left Heart Syndrome, Complex Pulmonary Atresia and Corrected Transposition & double switch procedures.

Mr Barron will be well known to many of our families who have trusted their child’s care to his hands in Birmingham. This is a unique opportunity for Northern Irish heart families to hear from Mr Barron and be able to ask questions!

Don’t miss out! To book your tickets email or book online at… Early bird offer still on until Fri 25 Sept!!

Free crèche facilities and teens programme on day too!  For more info visit

Fab Fundraiser Friday 4.9.15

Friday, September 4th, 2015

It’s been another busy week at CHT HQ and another busy week for fundraisers raising awareness and fantastic funds for us! Here’s just some of our Fab Fundraisers this week!


Ballynure W.I
Isobel Bingham is pictured giving Lynn a donation of £100.00. Lynn recently gave a talk to Ballynure Women’s Institute on the work of Children’s Heartbeat Trust and they very generously gave a donation to the charity.
Cathy McCloskey is pictured with her daughter Brook and Noleen McMachon from Asda presenting a cheque to Izzie from Clark Clinic and Lynn from CHT for £604.00. The fantastic amount was raised from entering a relay team into the Belfast Marathon.
Danielle Gilchrist - Sheepland Farm
Sheepland Farm, Ardglass held their annual charity BBQ during the Summer and raised £1,450 each for CHT and Marie Curie Cancer Care. The BBQ is always a great event which everyone looks forward to. Many Thanks go to the Sheepland Farm Family and Friends for their support.
Jennifer Keys
Jennifer Keyes is pictured with her family presenting Lynn from CHT with a cheque for £235 which was raised from a recent coffee morning! Well done to everyone involved!
Julie Hull
Julie Hull is pictured with her family presenting a cheque at the recent family day to Lynn. She raised the money by taking part in the Belfast Titanic Half Marathon. Well done Julie in raising £842.00 and many thanks to all who supported her!
Kirsty McCammon
Kirsty McCammon along with her family and friends held a BBQ and Fundraiser in Bawn Hall, Aughnacloy which raised a brilliant amount of £815.00. Thank you to everyone who attended and donated prizes for the event.
Mary Ellen O'Hare
Mary Ellen O’Hare along with family and friends entered two teams into the Belfast Marathon Relay. They did a fantastic job in raising an amazing £2,574.80 for Children’s Heartbeat Trust! Who’s signing up for next year?
North Down Physio
Thanks to North Down Physio who raised funds offering free massages at the Grand Fondo and Half Marathon events with donations welcome to Children’s Heartbeat Trust. Pictured is Julia Webster, Owner with team member presenting a generous cheque for £374.10.

Genetics specialist, Dr Shane McKee to speak at Family Conference 2015

Monday, August 31st, 2015

We are delighted to announce that Dr Shane McKee, Consultant in Genetic Medicine is one of our Keynote Speakers at our Family Conference 2015!

Dr McKee has a special interest in genetic mechanisms of birth disorders and congenital syndromes and is looking forward to meeting and sharing his expert knowledge and experience with our heart families.

You can now book your place online by clicking HERE or you can email for hard copy forms.

Early bird rates are still available until Friday 25 September! HeartTattoo

Summer Blast 2015

Monday, August 24th, 2015


What a weekend…..

We have just returned (and recovered!) from our second Summer Blast weekend with yet another fantastic group of teens!  This year’s Summer Blast took place at Shannaghmore Outdoor Education Centre in Newcastle sandwiched between the backdrop of the gorgeous Mourne Mountains and the Irish Sea – Thank goodness we had the weather on our side!

We kicked off the weekend with the fantastically entertaining Joe at The Gathering Drum who kept us all on our toes and on the beat with his African drumming workshop!


After lunch we all suited up and headed off to Castlewellan with our canoes in tow. We all helped to prepare the boats for some Canadian canoeing and took off in small groups to explore the lough…..and steal Dr McCrossan’s boat! On our way back to dry land our competitive nature kicked in which resulted in a 3-way splash off between each of the boats….fortunately we were all far too wet to work out who won!


Once we all had a much needed shower and some chill out time in the games room it was time for Nightline, we all wore blindfolds and had to put our trust in our teammates under the guidance of our Instructors Leo and George who turned out to be not so trustworthy after all!!


We chilled out on Saturday night with a DVD and lots of well earned munchies as we had an early start the next morning for our high and low rope challenges….The high ropes looked ok from the security of flat ground but once we took in the view at the top of the course the challenge seemed to become a lot bigger! Although the low ropes were a lot closer to the ground they were every bit as challenging…particularly when the alternative to balancing on the ropes was to plunge into a stinky, muck filled swamp…. let’s just say not everyone finished the low rope challenge as clean as they started!!


After a weekend full of fun, laughs, overcoming fears, meeting new friends, trying new activities and a few hundred whoop whoops we have to thank everyone that made this Summer Blast a success; HUGE THANK YOU to Catherine, Jan and Claire our Specialist Nurses and Dr Chris Lockhart and Dr Brian McCrossan for your support over the weekend and most importantly to our fantastic group of teens for coming along and giving your all this weekend….we certainly had a blast and we hope you did too!! CHT Team


If you are aged between 12 – 16 and would like to get involved in our Teen Programme we would love to hear from you! Email or come along to our Family Conference on 17th October and take part in our teen workshops!

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Fab Fundraiser Friday 21.8.15

Friday, August 21st, 2015


Another Friday, another Fab Fundraiser Post.  As promised, here is another snippet of some of the fantastic fundraising that has been happening lately!

Ardboe GAC
Massive well done to Ardboe GAC + U14 Feile boys & their parents who raised a huge £1000 for Childrens Heartbeat Trust at a recent presentation night in Ardboe Parish Centre. L-R Lynn from Children’s Heartbeat Trust, U14 Feile Players & Ryan Forbes who recently underwent Open Heart Surgery in London.
Carlin Family
The Carlin Family presenting a cheque for £775 to CHT at the hospital. Money was raised via a bonus ball competition and wristband selling!
Colin Valley Golf Club
Stephen Cushnahan from Colin Valley Golf Club presented Lynn with £100 raised from a recent golf day at the club. Many Thanks to all involved!
Gemma Donnelly Sky Dive
Mary McNally, Kylie McVeigh and Gemma Donnelly collectively handed over £1340 to Lynn from CHT raised for their skydive which they will be doing tomorrow! They also presented the same amount to Downs & Proud. What an amazing achievement! Enjoy your skydive girls!!
Poppy Lennox
Pictured is Paul Friel, Poppi Lennox and their daughter Sorcha Lennox Friel presenting a cheque for £2,359.45 to CHT on Sunday! Money was raised through a coffee morning, football tournament and a sponsored walk. Well Done and Great Work!
Rosie Henry
Pictured is little Rosie Henry with her aunties and Mum presenting a cheque to CHT for £2387.69. Money was raised by Rosie’s aunts taking part in a sponsored run, a non-uniform day at Macosquin Primary School and donations from the Macsoquin community. Fantastic!

Conquer The Castle

Monday, August 10th, 2015



Take on a unique and thrilling challenge of abseiling 100ft down the side of one of Belfast’s most iconic buildings – Belfast Castle!  Abseil the tower and take in the spectacular scenery across Belfast Lough and beyond!

Clark Abseil 1



By choosing to conquer the castle for Children’s Heartbeat Trust, your commitment, drive & fundraising efforts will make a real difference to children and young people living with heart disease in Northern Ireland. Every pound you raise will help us to maintain our services and support.



We ask all participants to aim for the skies with their fundraising efforts but would ask for a minimum sponsorship of £100 which is used towards our services of care and support to local families.  As mentioned we encourage all participants to aim for the skies with their fundraising so if you can raise above this – great!



Clark the Bear is already getting set to Conquer the Castle!



Registration is £30 per person and you can register on-line to secure your place HERE!

Alternatively you can ring or email Lynn for a hard copy registration sheet on 028 9031 2228 or email:

What’s next?

Once registered we will send a Children’s Heartbeat Trust sponsorship form and t-shirt to you, so that you can start fundraising!

If you are registering as a group, we will give you registration times after one another for your abseil date. These will be allocated closer to the time.

The Abseil will be fully managed by Bryson Lagan Sports and you will be provided with all equipment, training from qualified instructors, provision of first aid (in the unlikely event it would be required) and insurance cover.

Please Note…

·       You must be over 16 years to participate in an abseil.

·       If you are between 16 and 18 you need parental consent 

·       A medical form needs to be completed by all participants before the event

For further information please email