Archive for the ‘News’ Category

Hearty Tea Party!

Thursday, September 7th, 2017


Tip your teapot with a ‘Hearty Tea Party’


If you love cups of tea and sweet treats, then the Children’s Heartbeat Trust’s Hearty Tea Party is the perfect way to raise funds for a great cause this Autumn.

The children’s charity is asking members of the public to organise a wonderful Hearty Tea Party in workplaces, community centres, sports clubs or even in your own home on World Heart Day, Friday 29th September.

A ‘Hearty Tea Party’ can be big or small, offering an array of tantalising treats and scrumptious scones or just a good old fashioned mug of tea. As well as raising awareness of Congenital Heart Disease (CHD), the most common birth defect among children born in Northern Ireland, it will raise funds to support the work of Children’s Heartbeat Trust’s supporting local children and young people born with CHD and their families.

Launching the 2017 ‘Hearty Tea Party’, Lynn Cowan, Fundraiser at the Children’s Heartbeat Trust, said: “On World Heart Day we want to raise awareness of the impact congenital heart disease has on children and their families in Northern Ireland. Around 200 babies are born with CHD each year in N.I; many of which will undergo open heart surgery and need lifelong treatment, care and support.

Holding a ‘Hearty Tea Party’ in your office, community centre or wherever you can plug in your kettle, will help to raise vital funds to support our work. We all love to relax with a cup of tea and cake, so why not raise some money for a worthy cause at the same time? Your Hearty Tea Party doesn’t have to be held on World Heart Day, it can be great fun at any time and all support no matter how big or small is greatly appreciated.”

Children’s Heartbeat Trust is a local charity supporting children and young people with heart disease and their families. The charity works closely with Clark Clinic at the Royal Belfast Hospital for Sick Children to ensure that children with heart disease and their families receive the best care, treatment and support possible.



To sign up to host a Hearty Tea Party and get your fundraising pack please contact Lynn on 028 90312228 or email


Laurie and Hannah Martin help launch Children’s Heartbeat Trust’s Hearty Tea Party to mark World Heart Day on Friday 29th September.


Teens Info and Idea Day!

Tuesday, August 29th, 2017

Calling all 12 – 16 year olds!!!

Join us at The Jungle NI on Sat 7th Oct from 2pm – 6pm to get involved in some games and activities, munch on pizza and thrash out some great ideas for the upcoming year!  Get in touch with our new Youth and Family Support Worker Debz on 07483130853 or to book your place!

Summer Blast 2017

Monday, August 28th, 2017

What a weekend! We climbed, drove, challenged and laughed our way through Summer Blast 2017!



Todds Leap in Omagh played host to our Summer Blast overnight residential this year and it’s true what they say, time really does fly when you are having fun!

Thank you to all our fantastic heart teens that came along and took part in lots of different challenges and activities…. turns out we are a very competitive bunch!

A special word of thanks to our specialist nurses and volunteers that supported us throughout the weekend, without whom we simply couldn’t do it.

Check out what our teens have to say and keep your eye on our page for upcoming meet ups. Summer 2017…’s been a blast!


“It’s brilliant, you get to meet people that have other heart problems, get to be more open and can talk about it without being judged. You get so much support from all the nurses.”

Teen, 14, Belfast


“It’s fun and a great opportunity for me to meet people with heart disease.”

Teen, 12, Antrim


“It’s not that we have to talk about everything, we just get to have fun. It kinda shows you what you can do rather than what you can’t.”

Teen, 14, Omagh


Thank you to the team at Downtown Radio and Cool FM Cash 4 Kids for supporting Summer Blast 2017 with a Cash 4 Kids grant.


Tuesday, August 15th, 2017


Registration is now open for the second annual conference of the all-island Congenital Heart Disease (CHD) Network, which will be held this year at Riddel Hall, QUB Belfast on Friday 17 & Saturday 18 November 2017.

This is a free 2 day conference and families are welcome to attend both days, although the Saturday 18th programme will be focused on heart families and patients, with a creche and teens workshop available. The creche and teens workshop have limited availability so please book early to avoid disappointment.

For registration and further information click here –….

The full conference programme will be announced in early September. Key themes will be ‘Inherited Cardiac Conditions’ and ‘The Child with Complex CHD’.


Online Now! Heartbeats Magazine Issue 2/2017

Tuesday, August 15th, 2017

You can now read our Heartbeats magazine online!  Just click on the link below…


All Island CHD Network Conference 2017

Wednesday, July 26th, 2017

Our family conference will be taking place this year on Saturday 18 November in the Riddel Hall QUB, Belfast as part of the All Island CHD Network Conference.  The Network Conference is a free two-day conference (17 & 18 Nov) for all involved in the care of children with CHD in Northern Ireland and the Republic of Ireland (RoI).  Day 1 will have a clinical focus and Day 2 a patient and family focus.   We will be delivering day 2 of this conference in partnership with Heart Children Ireland and are hoping lots of families from RoI will be able to join us.

The main themes of the conference will be ‘Inherited Cardiac Conditions’ and ‘The child with complex CHD’.  Being part of the overall Network Conference means we will be able to bring internationally renowned specialist speakers to Day 2 and our heart families will be able to hear from and ask questions of more experts leading in their field.

Running alongside the main conference will be a Teens Programme for all our heart teens and siblings between 12 – 18 and we will also be offering a creche facility so parents can relax and enjoy the conference.

If you are interested in attending please email, put the date in your diary and keep an eye on our website and social media as we will be releasing further information about the programme over the next few weeks.

Free First Aid Courses

Wednesday, July 26th, 2017

We have not one but two upcoming Paediatric First Aid Courses taking place in Omagh and Coleraine after Summer! This is a certified 1 day course and is free to all our lovely heart families over the age of 16. The feedback from this course has been fantastic with families describing the course as:

“Excellent hands on training, gave us the knowledge and confidence to be able to perform first aid if needed.”

Due to the nature of the training, spaces on the course are limited so if you would like to take part please don’t hesitate to book your space by emailing or call 07436589480

We want your thoughts – new Children’s Heart Centre at RBHSC

Friday, June 30th, 2017

CHT have pledged £100,000 for the new Children’s Heart Centre at the Royal Belfast Hospital for Sick Children (RBHSC).  The funds will help create a child and family friendly environment for outpatients, cardiac investigations and clinical rooms.

We would like to hear what you would like to see in the new Children’s Heart Centre as your suggestions will help us to better understand and plan for how the funds will be spent.  We have drawn up a short survey to gather this information so please click on the link below and take a few minutes to fill it in.

Please also share this with your own heart child and family and ask them what they would like to see.



Ten out of ten teacher gift!

Wednesday, June 14th, 2017

As school term comes to an end it can be a difficult task looking for a unique teacher gift. Why not do something a little different by making a donation in lieu of a present?

We can provide you with a personalised card and charity pin badge to give to your child’s teacher on the last day of school. Your child can even draw a picture or sign the inside to make it more personal!

This is a great way to mark your heartfelt thanks for their hard work throughout the year whilst supporting local heart children in Northern Ireland.

On the card we do not disclose the donation amount, so any donation to matter how small is greatly appreciated.

To get a personalised card for your child’s teacher, please email or call Alison on 028 9031 2228.



Tuesday, June 13th, 2017


This summer, the sky is the limit as you take to the air in our Tandem Charity Skydive.  It is one of the most exciting and exhilarating things you will ever do.

Jumping 13,000ft and freefalling through blue skies for 7,000ft until your canopy opens and you glide to the ground surrounded by the most wonderful views of Northern Ireland.  An experience not to be missed!


We are delighted to team up with Moonjumper International for our Tandem Skydive were you will be attached to an instructor using a dual hardness.

The Moonjumper sky centre is an affiliated British Parachute Association centre and all instructors are BPA registered. 

When and where it is taking place?

The jump is scheduled for Sunday 20th August.  The jump is totally weather dependent and may be subject to change. 

The Tandem Skydive will take place at the Wild Geese Centre in Garvagh, just outside Coleraine.  Please note that if you wish to take part a full day will need to be kept free. All participants will be required to attend in the morning and will jump as soon as the weather is suitable during that day. Friends and Family are welcome to spectate.

What does it cost?

By choosing to jump for Children’s Heartbeat Trust, your commitment, drive & fundraising efforts will make a real difference to children and young people living with heart disease in Northern Ireland. Every pound you raise will help us to maintain our services and support.

Their is an initial commitment/registration fee of £40 per person. (non refundable). Upon registration we request that all participants raise a minimum of £400.  This will cover the full cost of the jump and sponsorship to the charity.  We encourage all participants to aim for the skies with their fundraising so if you raise over and above this – great!

An additional £35 Insurance Policy Fee will be required on the day and lasts for one year.

Is there any restrictions on age/weight/health etc.?


  • You must be aged between 16 – 80 to participate in Tandem Jumps 

  • If you are between 16 and 18 you need written parental consent

  • Weight restrictions. Men must weigh under 15 stone and if you are Female 13 stone.

  • If you have any form of medical condition, you must seek advice from your doctor to certify you are fit and able to partake. Some conditions will require a medical form will need to be completed.

How do I register?

You must complete a registration form and return this to the charity along with your Registration fee of £40 per person to secure your place (non refundable). A form can be requested from or calling 028 9031 2228.

Places will be allocated on a first come, first served basis.

What’s next?

Once registered we will then send you a Children’s Heartbeat Trust sponsorship form and fundraising pack so that you can start fundraising for your jump!

We hope you will be able to join us on this exciting challenge.

If you have any additional questions, please dont hesitate to contact us.