Archive for the ‘News’ Category
What a fantastic day we had at the Seagoe Hotel on Sunday 4th December at our Christmas Party!
We began the festivities with a VIP concert from our fave Frozen Princesses Anna and Elsa and had lots on offer from Christmas Crafts and frosty fun to making magic cookies, taking super cool sELFies and building our own marshmallow snowmen (before eating them!!) As a very special treat Santa travelled the whole way from Lapland just to come and see us…. and he even brought presents! We really enjoyed catching up with some familiar faces and welcoming some new families into our huge heart family!
Huge thankyou to all of our lovely families and helpful volunteers that came along to the event and brought lots of Christmas Spirit, we hope you all had as much fun as we did!
Hope you all have a very Merry Christmas and we look forward to seeing you all in 2017!
We are supporting a campaign being coordinated by the charity, Little Hearts Matters about making a change to DLA. This is a really important and frustrating issue for our heart families so if you have been affected please contact your local MP as below and encourage them to attend the meeting in Westminster to support having children’s heart disease recognised in the Disability Living Allowance Assessor Pack.
Help us make a change to Disability Living Allowance for children with heart disease.
Why are so many heart children turned down for DLA despite their disabilities? We think it’s partly because heart disease is not given a place in the guidance used by the people who look at claims.
On Tuesday 29th November national children’s heart and adult congenital heart charities are holding a meeting in Parliament to obtain MPs’ support in getting children’s heart disease recognised in the Disability Living Allowance Assessor pack.
We need your help to get as many MPs to attend the meeting as possible.
Please could you write to your MP and ask him or her to present you at the meeting. If you need to find your politician’s name and address, follow this link http://www.parliament.uk/mps-lords-and-offices/mps/.
You can also find an example of the kind of letter that you might send or email to your MP below. All you need to add is information about your own child, their needs and any problems you have had claiming DLA.
Link to sample letter HERE
This is your chance to help us make a change. Thank you.
Our beautiful Christmas Cards are now available to purchase! Each year they are designed by two of our wonderful heart kids and this year is no different.
A pack includes 10 cards, 5 of each design and can be purchased for £5.00 per pack.
To order, please email firstname.lastname@example.org or call 028 9031228.
Our next activity day out for our teens aged 12-16yrs will be Sunday 13th November 2016 from 12.45pm to 4.30pm.
Join us for some off road Segway in the Titanic area of Belfast and a Pizza afterwards at the Odyssey (SSE).
To register and for further details e-mail Stevie at familysupport@childrenshea
rtbeattrust.org or call the office on 02890312228.
Ho Ho Ho !
Join us for our Christmas festivities, food and entertainment on Sunday 4th December 1-5 pm at the Seagoe Hotel, Craigavon.
Book by e-mail to Stevie at:
Let us know your name and address along with the names and ages of your children.
Remember to tell us if you have any dietary requirements also. We look forward to seeing you all then for lots of festivities!
The Minister for Health, Michelle O’Neill MLA, today officially opened the new MRI Scanner Unit at the Royal Belfast Hospital for Sick Children. Attending the launch was Sarah Quinlan, Chief Executive of the Children’s Heartbeat trust, one of the four local children’s charities who raised £2million to help fund the scanner.
The Children’s MRI Scanner Appeal was set up by four charities: Carrickmannon MRI Scanner Children’s Appeal, Helping Hand, the Northern Ireland Children’s Cancer Unit Fund and the Children’s Heartbeat Trust. Between 2011 and 2013 they held and co-ordinated fundraising events right across NI, and this, along with funding from the Belfast Health & Social Care Trust, has funded the purchase, installation and running costs of the scanner.
Like all other children’s hospitals across the UK, the Royal Belfast Hospital for Sick Children will now be able to carry out investigations on patients without undergoing different types of investigation which may be invasive or involve radiation.
Speaking at the launch Sarah Quinlan, Chief Executive, Children’s Heartbeat Trust, said: “We came together with the goal of raising the funds that would help the Royal Belfast Hospital for Sick Children increase the service it gives to local children by installing an MRI scanner. Our target was to raise £2million and it was thanks to the wonderful fundraising efforts of the Northern Irish public that this amazing target was reached.
“The completion of the installation of the MRI will mean better detection for children, which will ultimately help in the treatment they are given. All four charities are delighted to have been able to support this project and we are grateful to everyone who donated and supported the appeal.”
On Sunday 9th October we had eight very brave supporters conquer Belfast Castle by taking part in our charity’s abseil. The weather was perfect and lots of supporters came out in force to cheer everyone as they abseiled 100ft down Belfast Castle’s tower. Big thanks and well done to everyone who took part to raise funds and awareness for local heart children.
If you would like to take part in an abseil for the charity, please register your interest with Lynn on 028 90312228 or email: email@example.com
Below is some photos taken from the day!
It’s Friday which means FAB FUNDRAISER FRIDAY! Once again we are indebted to everyone who has donated to our work, whether it be popping change into a charity collection box, holding an event or sponsoring someone. Thank you to everyone for your continued support. Here are just some of the supporters we caught on camera!
Children’s Heartbeat Trust have been selected to receive funding from the Co-op Local Community Fund.
The more support we get, the more funding we could receive. So if you’re a Co-op Member log in to your Co-op Membership account and choose us as your chosen charity. If you’re not a member, please join and support us!
How it works
Every time Co-op members choose Co-op branded products and services and use their Co-op Membership card, 1% of what they spend will go to their chosen cause.
Members can change their choice at any time until the end of the giving period on 18th March 2017.
If members don’t pick a cause during the giving period then their 1% is shared out equally between all the local causes in their community.
Any funds raised for Children’s Heartbeat Trust will be distributed to the charity after the end of the giving period.
If you’re not a Co-op Member you can join by signing up via: https://membership.coop.co.uk/register
You will then be able to support our work.
There are a select number of Co-op Stores and funeral homes that will be supporting our cause specifically and these are listed below:
Food: Abbots Cross – BT37 9QT
Food: Whitewell Road – BT36 7NH
Funeralcare: Glengormley (P) – BT36 7UA
Funeralcare: Browns Houston & Williamson (P) – BT37 9RU
Funeralcare: Mulhollands of Carrickfergus (P) – BT38 8BL
Funeralcare: Bairds of Antrim (P) – BT41 4BE
Please support these in anyway you can with your membership card.
It’s been another busy week of fundraising and a special mention must go to Harry and Kathleen McCann of Desertmartin Pony Drive & the Stewart Family who presented us with an phenomenal cheque for £14,200! It was such an amazing surprise and together with all our recent fundraising, we are just overwhelmed by the support we’re receiving. A big heartfelt thank you to everyone. All your wonderful help will make such a real difference to local heart families!