Archive for the ‘News’ Category

We want your thoughts – new Children’s Heart Centre at RBHSC

Friday, June 30th, 2017

CHT have pledged £100,000 for the new Children’s Heart Centre at the Royal Belfast Hospital for Sick Children (RBHSC).  The funds will help create a child and family friendly environment for outpatients, cardiac investigations and clinical rooms.

We would like to hear what you would like to see in the new Children’s Heart Centre as your suggestions will help us to better understand and plan for how the funds will be spent.  We have drawn up a short survey to gather this information so please click on the link below and take a few minutes to fill it in.

Please also share this with your own heart child and family and ask them what they would like to see.

https://www.surveymonkey.co.uk/r/HC26G7P

 

 

Ten out of ten teacher gift!

Wednesday, June 14th, 2017

As school term comes to an end it can be a difficult task looking for a unique teacher gift. Why not do something a little different by making a donation in lieu of a present?

We can provide you with a personalised card and charity pin badge to give to your child’s teacher on the last day of school. Your child can even draw a picture or sign the inside to make it more personal!

This is a great way to mark your heartfelt thanks for their hard work throughout the year whilst supporting local heart children in Northern Ireland.

On the card we do not disclose the donation amount, so any donation to matter how small is greatly appreciated.

To get a personalised card for your child’s teacher, please email admin@childrensheartbeattrust.org or call Alison on 028 9031 2228.

 

SKYDIVE for CHT!

Tuesday, June 13th, 2017

SUNDAY 20th AUGUST 2017

This summer, the sky is the limit as you take to the air in our Tandem Charity Skydive.  It is one of the most exciting and exhilarating things you will ever do.

Jumping 13,000ft and freefalling through blue skies for 7,000ft until your canopy opens and you glide to the ground surrounded by the most wonderful views of Northern Ireland.  An experience not to be missed!

 

We are delighted to team up with Moonjumper International for our Tandem Skydive were you will be attached to an instructor using a dual hardness.

The Moonjumper sky centre is an affiliated British Parachute Association centre and all instructors are BPA registered. 

When and where it is taking place?

The jump is scheduled for Sunday 20th August.  The jump is totally weather dependent and may be subject to change. 

The Tandem Skydive will take place at the Wild Geese Centre in Garvagh, just outside Coleraine.  Please note that if you wish to take part a full day will need to be kept free. All participants will be required to attend in the morning and will jump as soon as the weather is suitable during that day. Friends and Family are welcome to spectate.

What does it cost?

By choosing to jump for Children’s Heartbeat Trust, your commitment, drive & fundraising efforts will make a real difference to children and young people living with heart disease in Northern Ireland. Every pound you raise will help us to maintain our services and support.

Their is an initial commitment/registration fee of £40 per person. (non refundable). Upon registration we request that all participants raise a minimum of £400.  This will cover the full cost of the jump and sponsorship to the charity.  We encourage all participants to aim for the skies with their fundraising so if you raise over and above this – great!

An additional £35 Insurance Policy Fee will be required on the day and lasts for one year.

Is there any restrictions on age/weight/health etc.?

 

  • You must be aged between 16 – 80 to participate in Tandem Jumps 

  • If you are between 16 and 18 you need written parental consent

  • Weight restrictions. Men must weigh under 15 stone and if you are Female 13 stone.

  • If you have any form of medical condition, you must seek advice from your doctor to certify you are fit and able to partake. Some conditions will require a medical form will need to be completed.

How do I register?

You must complete a registration form and return this to the charity along with your Registration fee of £40 per person to secure your place (non refundable). A form can be requested from lynn@childrensheartbeattrust.org or calling 028 9031 2228.

Places will be allocated on a first come, first served basis.

What’s next?

Once registered we will then send you a Children’s Heartbeat Trust sponsorship form and fundraising pack so that you can start fundraising for your jump!

We hope you will be able to join us on this exciting challenge.

If you have any additional questions, please dont hesitate to contact us.

 

Picnic in the park!

Tuesday, June 13th, 2017

Join us for our second family fun day at Carnfunnock Country Park on Saturday 5th August. We have lots of fun activities for our heart families to enjoy so all you need to do is book your space, grab your picnic and meet us there! 

Contact Cathy to book your space.

cathy@childrensheartbeattrust.org

074 3658 9480

FAB FUNDRAISER FRIDAY 26.5.17

Friday, May 26th, 2017

We continue to be indebted to every single person who donates and raises awareness of our work with local heart children. Thank you doesn’t seem enough in acknowledging the true difference you are making to heart families in need of our support. 100% of our funding comes from local businesses, individuals, communities and corporates across NI and we are very proud of all the support we receive. Here’s just another snippet of some of the things that have took place in aid of CHT this sunny Friday. Wishing all our supporters and wonderful heart families a happy weekend in the sunshine.

Mums Pamper Party 2017!

Friday, May 26th, 2017

We had such a great day at our Pamper Party on Sunday 21st May at the luxurious penthouse suite of Obel Tower in Belfast. It was a pleasure to treat some of our lovely heart mums to a little bit of pampering and a lot of sweet treats whilst they got to know other local heart mums. We had a craft workshop, indian head massage, back and shoulder massage, nail painting and mini facials on the go which made sure everyone left super relaxed and with their own handmade picture as well as a few new friends. Huge thankyou to everyone that generously donated their time, goods and expertise to the event. CHT Team xx

 

 

2017 Summer Blast Residential

Friday, May 19th, 2017

Summer Blast is back!

We are so excited to announce our super popular Summer Blast overnight residential is open for registration!

If you are a teen aged 12-16 and living in NI with congenital or inherited heart disease then this is a weekend not to be missed! Summer Blast 2017 is a brilliant way to get to know other local young people living with heart disease.

The overnight residential will take place at Todds Leap in Omagh from Saturday 12th August at 10am to Sunday 13th August at 2pm. During Summer Blast there will be lots of outdoor activities on offer that you can take part in as a team or individual and we will head out to catch a film or a few games of bowling on the Saturday evening.

Summer Blast is FREE for Heart Teens living in Northern Ireland.

Contact Cathy for further details or to register. Places are limited so please don’t hesitate to get in touch.

Most parents prepare for first steps, Some prepare for first heart surgery

Wednesday, May 17th, 2017

 

Most parents prepare for first steps, Some prepare for first heart surgery

Every year 200 babies are born in Northern Ireland with heart disease, making it the most common birth defect in NI. That was the message delivered at the launch of Heart Week which is organised by the charity to raise awareness of congenital heart disease and the impact it has on children and their families in Northern Ireland.

The launch of Heart Week saw children with Congenital Heart Disease (CHD) and their families gathered in Belfast for a 200 red balloon event to mark the 200 babies born each year with CHD.

Speaking at the campaign launch, Sarah Quinlan, Chief Executive, Children’s Heartbeat Trust, said: “The birth of a baby is a wonderful and happy experience for families. However, over 200 each year in Northern Ireland will also be faced with the diagnosis of a congenital heart defect which will mean that rather than beginning to plan for baby’s first steps or first words, a number of these families will find themselves planning for the first heart surgery.

“Heart disease is the most common birth defect for children born here, and, while it can be detected during ante natal scans, it is also often not diagnosed until birth and on occasion not until days or weeks after birth. At this young age, these babies go through complex procedures, such as open heart surgery, interventions or having a pacemaker fitted. For parents of new born babies this a lot to deal with, particularly when it can mean travelling to England for surgery.

“HeartWeek aims to raise awareness of the prevalence of congenital heart disease and the work of the Children’s Heartbeat Trust, who provide support for these babies and their families, from the early days right through to their teenage years.”

In July 2016 Health Ministers Michelle O’Neill MLA and Simon Harris TD announced the commencement of the All-Island CHD Network for the treatment of children with congenital heart disease. The network will see paediatric cardiac surgery undertaken in Our Lady’s Children’s Hospital, Crumlin, Dublin, (OLCHC) with all other paediatric cardiology care taking place at the Royal Belfast Hospital for Sick Children.  As of March 2017 all urgent and emergency surgeries are taking place in OLCHC, and all elective surgery is scheduled to take place there by the end of 2018.

Ms Quinlan added: “Our goal is the development of facilities that will ensure a world class care pathway for all children born with congenital heart disease, including the development of a Children’s Heart Centre in Belfast as central element of a fully realised All-Island network.

“With over 200 babies each year born with a congenital heart defect it is crucial that these vulnerable children can access the best care and services possible.

The Children’s Heartbeat Trust is asking people to support HeartWeek on Facebook and twitter using the hashtag #200HeartBabies.

Youth and Family Support Worker

Tuesday, May 9th, 2017

We wish to appoint a Youth and Family Support Worker to develop and deliver support services for young people and families affected by congenital heart disease.

ABOUT THE ROLE

This post provides the opportunity for an enthusiastic, motivated and outgoing individual to make a significant difference to the young people and families the Children’s Heartbeat Trust support.  The individual will lead in the delivery of projects and services for young people with heart disease aged 11 – 18.

The role also includes developing Children’s Heartbeat Trust’s local family support groups and supporting local family support coordinators in the delivery of events and workshops across Northern Ireland.

You will have the opportunity to work on your own initiative but will be supported by a manager and enthusiastic volunteers to develop and deliver the youth and family support programmes.

We welcome dynamic and committed individuals to apply for this post and join the Children’s Heartbeat Trust team.

Essential Criteria includes

–       Third level qualification in relevant subject

–       Minimum of 2 years recent experience of working with young people in a support service setting

–       Hold a valid driver’s licence and have access to a car.

For an application pack please email admin@childrensheartbeattrust.org

Children’s Heartbeat Trust reserve the right to interview only those candidates who appear from the information provided to be the most suitable for the job.

We are an equal opportunities employer.

 

 

FAB FUNDRAISER FRIDAY 5.5.17

Friday, May 5th, 2017

It’s Friday and the sun is shining so we’re looking forward to a beautiful weekend and looking back on some of the fantastic fundraisers we have had recently. We’ve had a really busy year so far and we can’t thank you all enough for every single penny raised. Here’s just a snippet of just some of the wonderful fundraising that’s been going on! Don’t forget to let us know of any fundraising in aid of the charity. Hope you all have a fab weekend of BBQ’s and sunshine!