A charity that delivers support to families of children with heart disease in Northern Ireland.
What We Do
The Children’s Heartbeat Trust delivers emotional and practical support to children and young people with heart disease in Northern Ireland, and their families. We do this by;
Financial support for Clark Clinic at the RBHSC:
Clark Clinic is Northern Ireland’s only regional unit for children that need specialist treatment for heart conditions. The Children’s Heartbeat Trust helps fund top quality medical equipment and pioneering medical initiatives to ensure that children and young people with heart disease in Northern Ireland receive the best care and treatment possible in an age-appropriate environment.
Accommodation at the RBHSC:
We maintain accommodation directly above Clark Clinic for parents to stay in when their child is being treated. This allows parents to stay at the hospital in comfortable surroundings, in what is often a traumatic time, both for the child and the parent.
Family Support Groups and Services:
Family Support Groups are set up throughout the province to provide local support. Through regular groups led by volunteer family coordinators, heart families have the opportunity to meet other families who are experiencing similar issues and problems. The charity also runs a teenage support programme to give teenagers with heart disease the opportunity to meet other teens facing similar lifestyle matters. The charity develops and delivers a range of family support services, from counselling to music therapy to first aid training. These services also include tailored support for families during their child’s treatment and care.
Research into heart disease in children:
We aim to fund and support research into the causes and treatment of heart disease in children. This research will improve health and lifestyle outcomes for children and young people living with heart disease.
Children’s Heartbeat Trust campaigns on policy issues that will improve outcomes and lifestyle for children and young people with heart disease.
Strategy 2017 – 2020
In December 2016, following consultation with heart families, heart teenagers, clinicians and other stakeholders, we launched our new three-year strategy. Our strategy highlights the charities key priorities for the coming years, to ensure that heart families across Northern Ireland can access high quality support and care from diagnosis until adulthood.