Archive for 2012
The HSCB have asked us to highlight that a final focus groups for teenagers and young adults has been scheduled for Wed 19 Dec 7pm – 8pm in Belfast. The aim of the focus group is to:
– Draw on the experiences of the participants
– Enhance understanding of issues highlighted within the consultation document
– Enhance understanding of the various options within the document
– Seek participants’ v
– To encourage participants to formally respond to the consultation by completing the consultation questionnaire.
This had gone out to a representative group of teenagers and young adults but the take up was quite low which is why we have now been asked to open it up. I know we have lots of teenager and adult patients coming through Clark Clinic and this is a good chance to have your say.
If you would like to attend this focus group could you please contact Claire Paterson at Participation Network by phone 028 9040 1290 or email – firstname.lastname@example.org.
ONLY ONE WEEK TO GO! All consultation responses on the future of children’s heart surgery in Northern Ireland must be into HSCB on Friday 21 Dec.
Make sure you get your response in, it can be either in the format provided or a letter or an email so there is no excuse!
Go to http://www.childrensheartbeattrust.org/hands-up-campaign/respond-to-consultation/ for the relevant documents and our guidelines to help you with your response.
You can email your response to PCCSConsultation@hscni.net or post to Paediatric Congenital Cardiac Service Consulation, Health & Social Care Board, 12 – 22 Linenhall Street, Belfast BT12 8BS. .
This year our Christmas shop includes stock with our old logo – we need to clear space on the shelves for lots of new items in the new year! Items and prices as below (P&P not included)
Christmas Cards – £5 for a pack of 10 cards
Clarke bear – £5 Santa hat not included 🙂
Children’s Heartbeat Trust Hoodie – donation
Children’s Heartbeat Trust Polo – donation
Children’s Heartbeat Trust Babygro – donation
Children’s Heartbeat Trust T-shirts – donation
Children’s Heartbeat Trust kids T-shirts – donation
Contact email@example.com /07584 164 815 to order.
**MARCH POSTPONED** We have decided that with the potential for continued street protests in Belfast on Saturday, we will have to postpone our planned march and family Christmas party. We cannot take the risk of children and families being caught up in other protests or disturbances. We are really disappointed about this but our priority is ensuring our families and children’s welfare. Our plan is to reschedule the March for January.
We have been forced to make the decision to postpone a planned rally and family Christmas party this weekend, in the face of continuing street protests.
Sarah Quinlan, Executive Officer of the Trust explained the situation.
“We had planned a Family March and Christmas Party to allow children and families to show their support for the retention of this vital service in Northern Ireland. The police and Parades Commission had been informed and hundreds of people were planning to come to Belfast from right across the region. The march to the Health & Social Care Board offices was to be followed by a party in City Hall for the children.
“I have been in ongoing contact with the police and unfortunately the situation is too volatile to go ahead with our rally. We need to make this decision now as pulling the event any closer to the date would be too late. We will come back in January and we are determined to make the voices of our children and parents heard.
“People need to make their views known on this crucial issue. There is political uncertainty surrounding the process as it applies in England and Wales, and in Scotland the process was rejected as unsuitable. The preferred option for clinicians and families is an all-island surgical network operating from Belfast and Dublin. I hope everybody who was going to support the rally will use that time to respond to the ongoing consultation.”
The consultation can be found at http://www.hscboard.hscni.net/lnews/Paediatric_Congenital_Cardiac_Services
Northern Ireland children are now the only children in the UK whose healthcare is subject to guidelines contained in the Safe & Sustainable guidelines drawn up originally to assess paediatric congenital surgical services for children in England and Wales. That was the message from the Children’s Heartbeat Trust following news of UK Secretary of State for Health Jeremy Hunt MP’s review of Sir Ian Kennedy’s recommendations, which proposed the closure of three children’s heart units at Leeds, Leicester and Royal Brompton.
Speaking following the news Children’s Heartbeat Trust Executive Officer Sarah Quinlan said: “The review of the decision to close three children’s heart surgery units in England by Health Secretary Jeremy Hunt vindicates the position of clinicians, parents and families in Northern Ireland who do not accept Sir Ian Kennedy’s proposals for the region.
“The Independent Reconfiguration Panel has the power to recommend the review of contested proposals for the reconfiguration of health care services. The panel will be reviewing the decision to review thedecision to close children’s heart surgery at the three hospital in England focusing on impact on patients due to extended travel times, the impact on other services in specialist paediatric units and how the consultation and decision-making process was undertaken.
“Families and clinicians in Northern Ireland have expressed deep concerns on each of these grounds. Our children would be more than 3 hours away from a surgical centre if Belfast was closed and other services including cardiology, renal surgery and neurosurgery could be greatly impacted. In addition, the consultation period here was much shorter than in England and Wales. If the method of consultation there is under review, then surely the shorter period of consultation here in Northern Ireland does not stand up to scrutiny.
“This decision means guidelines for the future care of English and Welsh children are now up for review. Today we are left in the lamentable position where the only children subject to such guidelines anywhere in the UK are those born in Northern Ireland. Families here who were told in August that services were not sustainable and a solution should be found within six months are now being subjected to further distress as the findings of the team who carried out this review are now themselves under review,” she added.
The Children’s Heartbeat Trust have today written to the Health Minister, HSCB Chief Executive and MLAs across Northern Ireland urging support for an all-island network which would see children’s heart surgery provided across two sites – Belfast and Dublin.